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Activism and Marginalization in the AIDS Crisis

Activism and Marginalization in the AIDS Crisis PDF Author: Michael A Hallett
Publisher: Routledge
ISBN: 131795792X
Category : Health & Fitness
Languages : en
Pages : 226

Book Description
Activism and Marginalization in the AIDS Crisis shows readers how the advent of HIV-disease has brought into question the utility of certain forms of “activism” as they relate to understanding and fighting the social impacts of disease. This informative and powerful book is centrally concerned about the ways in which institutionally governed social constructions of HIV/AIDS affect policy and public images of the disease more so than activist efforts. It asserts that an accounting of the power institutional structures have over the dominant social constructions of HIV disease is fundamental to adequate forms of present and future AIDS activism. Chapters in Activism and Marginalization in the AIDS Crisis demonstrate how, despite what is thought of as the “successful activism” of the past decade, the claims of the HIV-positive are still being ignored, still being marginalized, and still being administratively “handled” and exploited even as the plight of those who find themselves HIV-positive worsens. Although chapters reject the assertion that activism has been a highly effective remedy to HIV-positive voicelessness, authors do not deny that activists have been vocal, but that they continue to be ignored despite their vocality. Contributors in Activism and Marginalization in the AIDS Crisis offer numerous examples of institutional control and demonstrate that institutional structures, and not activists, are controlling the public meaning of HIV-related issues. Readers learn how messages about HIV/AIDS are produced, negotiated, modified, and sustained through institutional mechanisms that serve mostly institutional interests rather than those of the HIV-positive. In gaining an understanding of these issues, readers will begin to learn how to modify and strengthen activist efforts with valuable insight on: the lack of HIV-positive voices in mainstream news portrayals of HIV/AIDS research on constructions of HIV-disease at the state government level social constructions and how they affect HIV/AIDS policy the political construction of AIDS and interest-based struggles the emergent “bio-politics” of HIV and homosexuality in the U.S. how institutional power works to govern public understanding of HIV disease Institutional structures are defined in this book as groups engaged in and defined by the production of various “truths” which sustain them. Institutional power may be defined as the capacity to regulate, constrain, and disseminate versions of “truth.” Activism and Marginalization in the AIDS Crisis reveals how HIV activist groups have been outmaneuvered when it comes to the production and dissemination of various “truths” about HIV/AIDS by institutional structures more deeply steeped in social legitimacy and which have a superior capacity for message dissemination. HIV/AIDS activists, HIV-positive persons and those with AIDS, HIV/AIDS educators, public and institutional policymakers, health professionals, and the general public will find this book essential to understanding the social constructions of HIV/AIDS, how these affect HIV/AIDS-related policy and public opinion, and how to begin to cipher through the plethora of information to find and promote the “truth.”

Activism and Marginalization in the AIDS Crisis

Activism and Marginalization in the AIDS Crisis PDF Author: Michael A Hallett
Publisher: Routledge
ISBN: 131795792X
Category : Health & Fitness
Languages : en
Pages : 226

Book Description
Activism and Marginalization in the AIDS Crisis shows readers how the advent of HIV-disease has brought into question the utility of certain forms of “activism” as they relate to understanding and fighting the social impacts of disease. This informative and powerful book is centrally concerned about the ways in which institutionally governed social constructions of HIV/AIDS affect policy and public images of the disease more so than activist efforts. It asserts that an accounting of the power institutional structures have over the dominant social constructions of HIV disease is fundamental to adequate forms of present and future AIDS activism. Chapters in Activism and Marginalization in the AIDS Crisis demonstrate how, despite what is thought of as the “successful activism” of the past decade, the claims of the HIV-positive are still being ignored, still being marginalized, and still being administratively “handled” and exploited even as the plight of those who find themselves HIV-positive worsens. Although chapters reject the assertion that activism has been a highly effective remedy to HIV-positive voicelessness, authors do not deny that activists have been vocal, but that they continue to be ignored despite their vocality. Contributors in Activism and Marginalization in the AIDS Crisis offer numerous examples of institutional control and demonstrate that institutional structures, and not activists, are controlling the public meaning of HIV-related issues. Readers learn how messages about HIV/AIDS are produced, negotiated, modified, and sustained through institutional mechanisms that serve mostly institutional interests rather than those of the HIV-positive. In gaining an understanding of these issues, readers will begin to learn how to modify and strengthen activist efforts with valuable insight on: the lack of HIV-positive voices in mainstream news portrayals of HIV/AIDS research on constructions of HIV-disease at the state government level social constructions and how they affect HIV/AIDS policy the political construction of AIDS and interest-based struggles the emergent “bio-politics” of HIV and homosexuality in the U.S. how institutional power works to govern public understanding of HIV disease Institutional structures are defined in this book as groups engaged in and defined by the production of various “truths” which sustain them. Institutional power may be defined as the capacity to regulate, constrain, and disseminate versions of “truth.” Activism and Marginalization in the AIDS Crisis reveals how HIV activist groups have been outmaneuvered when it comes to the production and dissemination of various “truths” about HIV/AIDS by institutional structures more deeply steeped in social legitimacy and which have a superior capacity for message dissemination. HIV/AIDS activists, HIV-positive persons and those with AIDS, HIV/AIDS educators, public and institutional policymakers, health professionals, and the general public will find this book essential to understanding the social constructions of HIV/AIDS, how these affect HIV/AIDS-related policy and public opinion, and how to begin to cipher through the plethora of information to find and promote the “truth.”

Activism Against AIDS

Activism Against AIDS PDF Author: Brett C. Stockdill
Publisher: Lynne Rienner Publishers
ISBN: 9781588261113
Category : AIDS (Disease)
Languages : en
Pages : 240

Book Description
AIDS has claimed the lives of more than 400,000 people in the United States, becoming the focus of intense social activism. Brett Stockdill reveals that people living with HIV/AIDS are often multiply oppressed - women of color, for example - and explores how interlocking oppressions fragment activism and thus impede AIDS prevention and intervention. Demonstrating that a unified approach to issues of race, class, gender, and sexuality can most effectively combat the AIDS epidemic, he highlights the critical link between social analysis and public policy.

AIDS and the Distribution of Crises

AIDS and the Distribution of Crises PDF Author: Jih-Fei Cheng
Publisher: Duke University Press
ISBN: 1478009268
Category : Social Science
Languages : en
Pages : 254

Book Description
AIDS and the Distribution of Crises engages with the AIDS pandemic as a network of varied historical, overlapping, and ongoing crises born of global capitalism and colonial, racialized, gendered, and sexual violence. Drawing on their investments in activism, media, anticolonialism, feminism, and queer and trans of color critiques, the scholars, activists, and artists in this volume outline how the neoliberal logic of “crisis” structures how AIDS is aesthetically, institutionally, and politically reproduced and experienced. Among other topics, the authors examine the writing of the history of AIDS; settler colonial narratives and laws impacting risk in Indigenous communities; the early internet regulation of both content and online AIDS activism; the Black gendered and sexual politics of pleasure, desire, and (in)visibility; and how persistent attention to white men has shaped AIDS as intrinsic to multiple, unremarkable crises among people of color and in the Global South. Contributors. Cecilia Aldarondo, Pablo Alvarez, Marlon M. Bailey, Emily Bass, Darius Bost, Ian Bradley-Perrin, Jih-Fei Cheng, Bishnupriya Ghosh, Roger Hallas, Pato Hebert, Jim Hubbard, Andrew J. Jolivette, Julia S. Jordan-Zachery, Alexandra Juhasz, Dredge Byung'chu Kang-Nguyễn, Theodore (Ted) Kerr, Catherine Yuk-ping Lo, Cait McKinney, Viviane Namaste, Elton Naswood, Cindy Patton, Margaret Rhee, Juana María Rodríguez, Sarah Schulman, Nishant Shahani, C. Riley Snorton, Eric A. Stanley, Jessica Whitbread, Quito Ziegler

Women, AIDS, and Activism

Women, AIDS, and Activism PDF Author: Marion Banzhaf
Publisher:
ISBN:
Category : Health & Fitness
Languages : en
Pages : 318

Book Description
"Finally, a comprehensive and progressive book about women in the AIDS epidemic. With informative discussion of safer sex and sexuality, HIV testing, treatment and drug trials, public policy, and activism, Women, AIDS & Activism is the only thorough and up-to-date analysis of AIDS issues for women. Looking at issues specific to lesbians, heterosexuals, bisexuals, prostitutes, intravenous drug users, teenagers, mothers, pregnant women, and women in prisons, this book is essential reading for everyone concerned about women's health and the AIDS crisis." --From back cover

Gendered Epidemic

Gendered Epidemic PDF Author: Nancy L. Roth
Publisher: Routledge
ISBN: 1136673326
Category : Art
Languages : en
Pages : 260

Book Description
Since nearly the beginning of the AIDS epidemic, activists have signaled the inadequacy of prevention strategies and drug protocols that have been developed from research done primarily on men. The latest C.D.C. figures prove they were right; for the first time since the beginning of the epidemic, AIDS cases among white men have fallen, yet the largest increases are among women. Weaving together theoretical, critical, and practical perspectives, Gendered Epidemic is a collection of essays that questions the add women and stir model that governs most HIV/AIDS prevention and treatment efforts. The individual essays describe conflicts and contradictions, and pose new theories and practices. Written by HIV positive women, theorists, teachers, artists, policy makers and activists, it offers insights necessary to stem the spread of HIV.

Let the Record Show

Let the Record Show PDF Author: Sarah Schulman
Publisher: Farrar, Straus and Giroux
ISBN: 0374719950
Category : Biography & Autobiography
Languages : en
Pages : 736

Book Description
Winner of the 2022 Lambda Literary LGBTQ Nonfiction Award and the 2022 NLGJA Excellence in Book Writing Award. Finalist for the PEN/John Kenneth Galbriath Award for Nonfiction, the Gotham Book Prize, and the ALA Stonewall Israel Fishman Nonfiction Award. A 2021 New York Times Book Review Notable Book and a New York Times Book Review Editors' Choice. Longlisted for the 2021 Brooklyn Public Library Literary Prize. One of NPR, New York, and The Guardian's Best Books of 2021, one of Buzzfeed's Best LGBTQ+ Books of 2021, one of Electric Literature's Favorite Nonfiction Books of 2021, one of NBC's 10 Most Notable LGBTQ Books of 2021, and one of Gay Times' Best LGBTQ Books of 2021. "This is not reverent, definitive history. This is a tactician’s bible." --Parul Sehgal, The New York Times Twenty years in the making, Sarah Schulman's Let the Record Show is the most comprehensive political history ever assembled of ACT UP and American AIDS activism In just six years, ACT UP, New York, a broad and unlikely coalition of activists from all races, genders, sexualities, and backgrounds, changed the world. Armed with rancor, desperation, intelligence, and creativity, it took on the AIDS crisis with an indefatigable, ingenious, and multifaceted attack on the corporations, institutions, governments, and individuals who stood in the way of AIDS treatment for all. They stormed the FDA and NIH in Washington, DC, and started needle exchange programs in New York; they took over Grand Central Terminal and fought to change the legal definition of AIDS to include women; they transformed the American insurance industry, weaponized art and advertising to push their agenda, and battled—and beat—The New York Times, the Catholic Church, and the pharmaceutical industry. Their activism, in its complex and intersectional power, transformed the lives of people with AIDS and the bigoted society that had abandoned them. Based on more than two hundred interviews with ACT UP members and rich with lessons for today’s activists, Let the Record Show is a revelatory exploration—and long-overdue reassessment—of the coalition’s inner workings, conflicts, achievements, and ultimate fracture. Schulman, one of the most revered queer writers and thinkers of her generation, explores the how and the why, examining, with her characteristic rigor and bite, how a group of desperate outcasts changed America forever, and in the process created a livable future for generations of people across the world.

Remaking a Life

Remaking a Life PDF Author: Celeste Watkins-Hayes
Publisher: Univ of California Press
ISBN: 0520968735
Category : Social Science
Languages : en
Pages : 335

Book Description
In the face of life-threatening news, how does our view of life change—and what do we do it transform it? Remaking a Life uses the HIV/AIDS epidemic as a lens to understand how women generate radical improvements in their social well being in the face of social stigma and economic disadvantage. Drawing on interviews with nationally recognized AIDS activists as well as over one hundred Chicago-based women living with HIV/AIDS, Celeste Watkins-Hayes takes readers on an uplifting journey through women’s transformative projects, a multidimensional process in which women shift their approach to their physical, social, economic, and political survival, thereby changing their viewpoint of “dying from” AIDS to “living with” it. With an eye towards improving the lives of women, Remaking a Life provides techniques to encourage private, nonprofit, and government agencies to successfully collaborate, and shares policy ideas with the hope of alleviating the injuries of inequality faced by those living with HIV/AIDS everyday.

The Boundaries of Blackness

The Boundaries of Blackness PDF Author: Cathy J. Cohen
Publisher: University of Chicago Press
ISBN: 022619051X
Category : Social Science
Languages : en
Pages : 411

Book Description
Last year, more African Americans were reported with AIDS than any other racial or ethnic group. And while African Americans make up only 13 percent of the U.S. population, they account for more than 55 percent of all newly diagnosed HIV infections. These alarming developments have caused reactions ranging from profound grief to extreme anger in African-American communities, yet the organized political reaction has remained remarkably restrained. The Boundaries of Blackness is the first full-scale exploration of the social, political, and cultural impact of AIDS on the African-American community. Informed by interviews with activists, ministers, public officials, and people with AIDS, Cathy Cohen unflinchingly brings to light how the epidemic fractured, rather than united, the black community. She traces how the disease separated blacks along different fault lines and analyzes the ensuing struggles and debates. More broadly, Cohen analyzes how other cross-cutting issues—of class, gender, and sexuality—challenge accepted ideas of who belongs in the community. Such issues, she predicts, will increasingly occupy the political agendas of black organizations and institutions and can lead to either greater inclusiveness or further divisiveness. The Boundaries of Blackness, by examining the response of a changing community to an issue laced with stigma, has much to teach us about oppression, resistance, and marginalization. It also offers valuable insight into how the politics of the African-American community—and other marginal groups—will evolve in the twenty-first century.

The Social Impact of AIDS in the United States

The Social Impact of AIDS in the United States PDF Author: National Research Council
Publisher: National Academies Press
ISBN: 0309046289
Category : Medical
Languages : en
Pages : 337

Book Description
Europe's "Black Death" contributed to the rise of nation states, mercantile economies, and even the Reformation. Will the AIDS epidemic have similar dramatic effects on the social and political landscape of the twenty-first century? This readable volume looks at the impact of AIDS since its emergence and suggests its effects in the next decade, when a million or more Americans will likely die of the disease. The Social Impact of AIDS in the United States addresses some of the most sensitive and controversial issues in the public debate over AIDS. This landmark book explores how AIDS has affected fundamental policies and practices in our major institutions, examining: How America's major religious organizations have dealt with sometimes conflicting values: the imperative of care for the sick versus traditional views of homosexuality and drug use. Hotly debated public health measures, such as HIV antibody testing and screening, tracing of sexual contacts, and quarantine. The potential risk of HIV infection to and from health care workers. How AIDS activists have brought about major change in the way new drugs are brought to the marketplace. The impact of AIDS on community-based organizations, from volunteers caring for individuals to the highly political ACT-UP organization. Coping with HIV infection in prisons. Two case studies shed light on HIV and the family relationship. One reports on some efforts to gain legal recognition for nonmarital relationships, and the other examines foster care programs for newborns with the HIV virus. A case study of New York City details how selected institutions interact to give what may be a picture of AIDS in the future. This clear and comprehensive presentation will be of interest to anyone concerned about AIDS and its impact on the country: health professionals, sociologists, psychologists, advocates for at-risk populations, and interested individuals.

The AIDS Generation

The AIDS Generation PDF Author: Perry N. Halkitis
Publisher: Oxford University Press
ISBN: 0199352461
Category : Medical
Languages : en
Pages : 256

Book Description
For young gay men who came of age in the United States in the 1980s, the HIV/AIDS epidemic was a formative experience in fear, hardship, and loss. Those who were diagnosed before 1996 suffered an exceptionally high rate of mortality, and the survivors -- both the infected individuals and those close to them -- today constitute a "bravest generation" in American history. The AIDS Generation: Stories of Survival and Resilience examines the strategies for survival and coping employed by these HIV-positive gay men, who together constitute the first generation of long-term survivors of the disease. Through interviews conducted by the author, it narrates the stories of gay men who have survived since the early days of the epidemic; documents and delineates the strategies and behaviors enacted by men of this generation to survive it; and examines the extent to which these approaches to survival inform and are informed by the broad body of literature on resilience and health. The stories and strategies detailed here, all used to combat the profound physical, emotional, and social challenges faced by those in the crosshairs of the AIDS epidemic, provide a gateway for understanding how individuals cope with chronic and life-threatening diseases. Halkitis takes readers on a journey of first-hand data collection (the interviews themselves), the popular culture representations of these phenomena, and his own experiences as one of the men of the AIDS generation. This riveting account will be of interest to health practitioners and historians throughout the clinical and social sciences -- or to anyone with an interest in this important chapter in social history. Cover photo courtesy of Fire Island Pines Historical Preservation Society.