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Author: Laurie Glader Publisher: Mac Keith Press ISBN: 9781909962989 Category : Medical Languages : en Pages : 0
Book Description
Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others. Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management. Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.
Author: Laurie Glader Publisher: Mac Keith Press ISBN: 9781909962989 Category : Medical Languages : en Pages : 0
Book Description
Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others. Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management. Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.
Author: Laurie J. Glader Publisher: ISBN: 9781909962996 Category : MEDICAL Languages : en Pages : 405
Book Description
This is the first book to focus exclusively on the management of the many medical comorbidities encountered by children and adolescents with more complex presentations of cerebral palsy.
Author: Freeman Miller Publisher: JHU Press ISBN: 0801883547 Category : Health & Fitness Languages : en Pages : 537
Book Description
When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.
Author: Nihad A. Almasri Publisher: Universal-Publishers ISBN: 1599423588 Category : Languages : en Pages :
Book Description
It is important for professionals who provide medical, rehabilitation, educational, and community services for children and youth with cerebral palsy to provide a quality medical home, family-centered, and needs-based services to address their needs and improve child and family well-being. Knowledge regarding determinants and unique profiles of needs for families of children and youth with cerebral palsy is limited. The aims of this research were to (1) test structural equation models of determinants of three types of family needs of parents of children and youth with cerebral palsy; (2) identify and describe unique profiles of family needs; and (3) examine whether profiles of needs are differentiated based on child, family, and service characteristics. Participants were 579 parents of children and youth with cerebral palsy. Children/youth and their parents completed a modified version of the Family Needs Survey, Family Environment Scale, Coping Inventory, Children's Assessment of Participation and Enjoyment, Measure of Processes of Care, and Services questionnaire. Research assistants determined the Gross Motor Function Classification System levels of the children. The structural models explained 23% of variance in needs related to child condition, 43% of variance in needs related to community and financial resources, and 33% of variance in needs related to family functioning. The determinants of the three models included different combinations of services (accessibility, coordination, processes), family (relationships, income), and child (gross motor function, adaptive behavior, communication problems) characteristics. K-means cluster analysis indicated four unique profiles of needs: Low Needs, Needs Related to Child Health Condition, Needs Related to Community and Financial Resources, and High Needs. Profile membership was differentiated based on child gross motor function and adaptive behavior, family relationships and income, and access to and coordination of services. Families who were included in the profile of low needs commonly reported accessible, coordinated, and family-centered care. The results emphasize the importance of providing medical and family-centered services to address the unique needs of families of children and youth with cerebral palsy. Service providers are encouraged to engage families in expressing their needs, collaborate with families in identifying resources to meet needs, and guide families in navigating complex service systems to address needs.
Author: Lily Collison MA MSc Publisher: ISBN: 9781952181009 Category : Family & Relationships Languages : en Pages : 368
Book Description
"A must-read for professionals, parents, and the individual with CP."-Deborah Gaebler-Spira, MDAn empowering and evidence-based guide for living a full life with spastic diplegia-bilateral cerebral palsy."This detailed and practical book on spastic diplegia, written by a parent in conjunction with medical practitioners at Gillette, is simply brilliant and fills a huge gap."-Lori Poliski, parentCerebral palsy (CP) is the most common cause of childhood-onset lifelong physical disability. Approximately one-third of those with CP have the subtype spastic diplegia-also known as bilateral spastic CP, or simply bilateral CP. An estimated 6 million worldwide have spastic diplegia. Until now, there has been no book focused on this condition to help this large group of people. This book focuses on the motor problems-problems with bones, muscles, and joints, and their impact on walking. The Gross Motor Function Classification System (GMFCS) is a five-level system that indicates the severity of the condition. This book is relevant to those at GMFCS levels I to III: those who are capable of walking independently or with a handheld mobility device. These three levels account for the majority of people with spastic diplegia.The book addresses how spastic diplegia develops over the lifespan and explains the evidence-based, best-practice treatments. It empowers parents of young children, and adolescents and adults with the condition, to become better advocates and co-decision makers in the medical process. The focus of this optimistic, yet practical book is on maximizing activity and participation-living life to its fullest. Health care professionals, educators, students, and extended family members will also benefit from reading this book. Indeed, while this book focuses on spastic diplegia, much of what is addressed also applies to other forms of spastic CP at GMFCS levels I to III, namely hemiplegia and quadriplegia.Written by Lily Collison, a parent of a son with spastic diplegia and a medical sciences graduate, in close collaboration with senior medical experts from Gillette Children's Specialty Healthcare-a world-renowned center of excellence for CP treatment-this is an excellent, long-needed resource for spastic diplegia.
Author: Jerome Bickenbach Publisher: Hogrefe & Huber Publishing ISBN: 9780889374317 Category : Classification Languages : en Pages : 0
Book Description
ICF Research Branch in cooperation with the WHO Collaborating Centre for the Family of International Classifications in Germany (at DIMDI) Practical, standardized tools to assess and document functioning, disability, and health according to the WHO ICF in a variety of health conditions and settings The WHO's International Classification of Functioning, Disability and Health (ICF) is the accepted common framework for understanding and documenting functioning and disability. The ICF Core Sets selected for this book have now been developed to facilitate the standardized use of the ICF in real-life clinical practice and thus improve quality of care. By using this collection of clear checklists, definitions, and forms, clinicians will quickly and easily be able to assess clients with a range of typical health conditions at different stages and in a variety of health care contexts. This manual: * Introduces the concepts of functioning and disability * Describes how and why the ICF Core Sets have been developed * Shows, step-by-step, how to apply the ICF Core Sets in clinical practice * Includes all 31 ICF Core Sets plus documentation forms (more than 1,400 pages of printable PDFs) on a CD-ROM. This manual is inherently multi-professional and will be of benefit not only for practitioners working in various health care contexts but also for students and teachers.
Author: Lenin C. Grajo Publisher: Slack ISBN: 9781630918545 Category : Languages : en Pages : 400
Book Description
A groundbreaking text for occupational therapists, Adaptation, Coping, and Resilience in Children and Youth: A Comprehensive Occupational Therapy Approach offers a different perspective in addressing the ways children and youth with a variety of conditions and personal contexts can have more optimized participation in everyday life. This text is essential for occupational therapy graduate students, instructors, and pediatric clinicians. Drs. Lenin C. Grajo and Angela K. Boisselle provide a comprehensive, strength-based approach in addressing the ability of children to adjust to a variety of challenges encountered in daily life across multiple environments and contexts. Adaptation, Coping, and Resilience in Children and Youth includes best and evidence-based practices for assessment and intervention. Included in the book: * Collaborative approach with families * How to build relationships through interprofessional collaboration (teachers, health care team, and community) * Global perspectives of adaptation, coping, and resilience * Case applications and essential considerations for occupational therapists The text also covers underexplored contexts such as those who have been bullied, children and youth who are LGBTQ and gender expansive, children and youth of color, those who live as a member of a migrant family, and those who have lived with and through adverse childhood experiences. Adaptation, Coping, and Resilience in Children and Youth: A Comprehensive Occupational Therapy Approach is a necessary text that offers timely best and evidence-based practices for assessment and intervention for occupational therapy students and professionals.
Author: Laurie Glader
Author: Laurie Glader
Author: Laurie J. Glader
Author: Freeman Miller
Author: Nihad A. Almasri
Author: Lily Collison MA MSc
Author: Nadire Berker
Author: Lauren Thompson
Author: Jane Meschan Foy
Author: Jerome Bickenbach
Author: Lenin C. Grajo