Fred's Not Here - Living with Alzheimer Disease Takes Courage PDF Download
Are you looking for read ebook online? Search for your book and save it on your Kindle device, PC, phones or tablets. Download Fred's Not Here - Living with Alzheimer Disease Takes Courage PDF full book. Access full book title Fred's Not Here - Living with Alzheimer Disease Takes Courage by Lynn Smith. Download full books in PDF and EPUB format.
Author: Lynn Smith Publisher: ISBN: 9780981046020 Category : Biography & Autobiography Languages : en Pages : 106
Book Description
Alzheimer Disease is a silent thief. Day by day it steals our memory - the very thing that tells us who we are, who we are with and how we got to where we are. Without that knowledge we feel hopelessly lost. Lynn Smith shares her story as caregiver for her mother who suffered from dementia in the hope that some of the lessons she learned will be helpful to anyone moving into that difficult role. There are many things she wished she had known earlier in her journey. This is not a medical book about dementia - but rather a personal story of living with it!! As well as her own journals, Lynn has included some of the many notes written by her mother which give a glimpse into the debilitating confusion experienced by a person suffering with dementia. She says, "If what I learned can spare someone else even a small amount of the pain that I experienced in losing my mother inch by inch and agonizing over how to care for her in the process without diminishing her as a person and ensuring that her dignity was honoured, then this book will have fulfilled its purpose."
Author: Lynn Smith Publisher: ISBN: 9780981046020 Category : Biography & Autobiography Languages : en Pages : 106
Book Description
Alzheimer Disease is a silent thief. Day by day it steals our memory - the very thing that tells us who we are, who we are with and how we got to where we are. Without that knowledge we feel hopelessly lost. Lynn Smith shares her story as caregiver for her mother who suffered from dementia in the hope that some of the lessons she learned will be helpful to anyone moving into that difficult role. There are many things she wished she had known earlier in her journey. This is not a medical book about dementia - but rather a personal story of living with it!! As well as her own journals, Lynn has included some of the many notes written by her mother which give a glimpse into the debilitating confusion experienced by a person suffering with dementia. She says, "If what I learned can spare someone else even a small amount of the pain that I experienced in losing my mother inch by inch and agonizing over how to care for her in the process without diminishing her as a person and ensuring that her dignity was honoured, then this book will have fulfilled its purpose."
Author: Amy Bloom Publisher: Random House ISBN: 0593243943 Category : Biography & Autobiography Languages : en Pages : 241
Book Description
NEW YORK TIMES BESTSELLER • A powerful memoir of a love that leads two people to find a courageous way to part—and a woman’s struggle to go forward in the face of loss—that “enriches the reader’s life with urgency and gratitude” (The Washington Post) “A pleasure to read . . . Rarely has a memoir about death been so full of life. . . . Bloom has a talent for mixing the prosaic and profound, the slapstick and the serious.”—USA Today ONE OF THE BEST BOOKS OF THE YEAR: NPR Amy Bloom began to notice changes in her husband, Brian: He retired early from a new job he loved; he withdrew from close friendships; he talked mostly about the past. Suddenly, it seemed there was a glass wall between them, and their long walks and talks stopped. Their world was altered forever when an MRI confirmed what they could no longer ignore: Brian had Alzheimer’s disease. Forced to confront the truth of the diagnosis and its impact on the future he had envisioned, Brian was determined to die on his feet, not live on his knees. Supporting each other in their last journey together, Brian and Amy made the unimaginably difficult and painful decision to go to Dignitas, an organization based in Switzerland that empowers a person to end their own life with dignity and peace. In this heartbreaking and surprising memoir, Bloom sheds light on a part of life we so often shy away from discussing—its ending. Written in Bloom’s captivating, insightful voice and with her trademark wit and candor, In Love is an unforgettable portrait of a beautiful marriage, and a boundary-defying love.
Author: Sue Fagalde Lick Publisher: She Writes Press ISBN: 1647426871 Category : Biography & Autobiography Languages : en Pages : 227
Book Description
No Way Out of This is not the kind of Alzheimer’s memoir where you read about a noble, self-sacrificing wife who gives up everything to take care of her husband. We see such spouses in books and movies—but they’re not telling the whole story. Nobody’s that good. Certainly Sue Lick isn’t. Sue’s much-older husband, Fred, is a forgetful man. She’s always found that charming. But when his absentmindedness worsens into full-blown dementia, she suddenly finds herself dealing with his illness alone. Struggling to care for Fred and manage their two loveable but incorrigible dogs and still find time to write and play music, Sue constantly faces impossible choices. Tell people about his illness? Let him drive? Put him in an institution? Treat his medical problems, or let him go? Every decision feels wrong—but in the end, their love carries them through it all. More than 6 million Americans suffer from dementia. One in three seniors have it. Add in the spouses, siblings, adult children, and professionals responsible for their care, and we all have a stake in this story. While some caregivers have loving families to support them and enough money to pay for the best care, more often the situation is a lot messier. Here the author, a longtime journalist, tells the truth about nursing homes, Medicaid, mental health, and more.
Author: Dennis Linn Publisher: Paulist Press ISBN: 9780809135790 Category : Religion Languages : en Pages : 84
Book Description
The Linns' simplification of the Ignatian examination of conscience is a way to find daily direction, experience emotional and spiritual growth and grow closer to both God and one's inner self.
Author: Bijal P. Trivedi Publisher: BenBella Books ISBN: 1948836629 Category : Medical Languages : en Pages : 744
Book Description
Recommended by Bill Gates and included in GatesNotes "Elaborating on the science as well as the business behind the fight against cystic fibrosis, Trivedi captures the emotions of the families, doctors, and scientists involved in the clinical trials and their 'weeping with joy' as new drugs are approved, and shows how cystic fibrosis, once a 'death sentence,' became, for many, a manageable condition. This is a rewarding and challenging work." —Publishers Weekly Cystic fibrosis was once a mysterious disease that killed infants and children. Now it could be the key to healing millions with genetic diseases of every type—from Alzheimer's and Parkinson's to diabetes and sickle cell anemia. In 1974, Joey O'Donnell was born with strange symptoms. His insatiable appetite, incessant vomiting, and a relentless cough—which shook his tiny, fragile body and made it difficult to draw breath—confounded doctors and caused his parents agonizing, sleepless nights. After six sickly months, his salty skin provided the critical clue: he was one of thousands of Americans with cystic fibrosis, an inherited lung disorder that would most likely kill him before his first birthday. The gene and mutation responsible for CF were found in 1989—discoveries that promised to lead to a cure for kids like Joey. But treatments unexpectedly failed and CF was deemed incurable. It was only after the Cystic Fibrosis Foundation, a grassroots organization founded by parents, formed an unprecedented partnership with a fledgling biotech company that transformative leaps in drug development were harnessed to produce groundbreaking new treatments: pills that could fix the crippled protein at the root of this deadly disease. From science writer Bijal P. Trivedi, Breath from Salt chronicles the riveting saga of cystic fibrosis, from its ancient origins to its identification in the dank autopsy room of a hospital basement, and from the CF gene's celebrated status as one of the first human disease genes ever discovered to the groundbreaking targeted genetic therapies that now promise to cure it. Told from the perspectives of the patients, families, physicians, scientists, and philanthropists fighting on the front lines, Breath from Salt is a remarkable story of unlikely scientific and medical firsts, of setbacks and successes, and of people who refused to give up hope—and a fascinating peek into the future of genetics and medicine.
Author: Greg O'Brien Publisher: Good Night books ISBN: 0991340191 Category : Health & Fitness Languages : en Pages : 309
Book Description
This is a book about living with Alzheimer’s, not dying with it. It is a book about hope, faith, and humor—a prescription far more powerful than the conventional medication available today to fight this disease. Alzheimer’s is the sixth leading cause of death in the US—and the only one of these diseases on the rise. More than 5 million Americans have been diagnosed with Alzheimer’s or a related dementia; about 35 million people worldwide. Greg O’Brien, an award-winning investigative reporter, has been diagnosed with early-onset Alzheimer's and is one of those faceless numbers. Acting on long-term memory and skill coupled with well-developed journalistic grit, O’Brien decided to tackle the disease and his imminent decline by writing frankly about the journey. O’Brien is a master storyteller. His story is naked, wrenching, and soul searching for a generation and their loved ones about to cross the threshold of this death in slow motion. On Pluto: Inside the Mind of Alzheimer’s is a trail-blazing roadmap for a generation—both a “how to” for fighting a disease, and a “how not” to give up!
Author: Publisher: ISBN: 9781414406299 Category : Video recordings Languages : en Pages : 1424
Book Description
A guide to programs currently available on video in the areas of movies/entertainment, general interest/education, sports/recreation, fine arts, health/science, business/industry, children/juvenile, how-to/instruction.
Author: Pauline BOSS Publisher: Harvard University Press ISBN: 0674028589 Category : Psychology Languages : en Pages : 166
Book Description
When a loved one dies we mourn our loss. We take comfort in the rituals that mark the passing, and we turn to those around us for support. But what happens when there is no closure, when a family member or a friend who may be still alive is lost to us nonetheless? How, for example, does the mother whose soldier son is missing in action, or the family of an Alzheimer's patient who is suffering from severe dementia, deal with the uncertainty surrounding this kind of loss? In this sensitive and lucid account, Pauline Boss explains that, all too often, those confronted with such ambiguous loss fluctuate between hope and hopelessness. Suffered too long, these emotions can deaden feeling and make it impossible for people to move on with their lives. Yet the central message of this book is that they can move on. Drawing on her research and clinical experience, Boss suggests strategies that can cushion the pain and help families come to terms with their grief. Her work features the heartening narratives of those who cope with ambiguous loss and manage to leave their sadness behind, including those who have lost family members to divorce, immigration, adoption, chronic mental illness, and brain injury. With its message of hope, this eloquent book offers guidance and understanding to those struggling to regain their lives. Table of Contents: 1. Frozen Grief 2. Leaving without Goodbye 3. Goodbye without Leaving 4. Mixed Emotions 5. Ups and Downs 6. The Family Gamble 7. The Turning Point 8. Making Sense out of Ambiguity 9. The Benefit of a Doubt Notes Acknowledgments Reviews of this book: You will find yourself thinking about the issues discussed in this book long after you put it down and perhaps wishing you had extra copies for friends and family members who might benefit from knowing that their sorrows are not unique...This book's value lies in its giving a name to a force many of us will confront--sadly, more than once--and providing personal stories based on 20 years of interviews and research. --Pamela Gerhardt, Washington Post Reviews of this book: A compassionate exploration of the effects of ambiguous loss and how those experiencing it handle this most devastating of losses ... Boss's approach is to encourage families to talk together, to reach a consensus about how to mourn that which has been lost and how to celebrate that which remains. Her simple stories of families doing just that contain lessons for all. Insightful, practical, and refreshingly free of psychobabble. --Kirkus Review Reviews of this book: Engagingly written and richly rewarding, this title presents what Boss has learned from many years of treating individuals and families suffering from uncertain or incomplete loss...The obvious depth of the author's understanding of sufferers of ambiguous loss and the facility with which she communicates that understanding make this a book to be recommended. --R. R. Cornellius, Choice Reviews of this book: Written for a wide readership, the concepts of ambiguous loss take immediate form through the many provocative examples and stories Boss includes, All readers will find stories with which they will relate...Sensitive, grounded and practical, this book should, in my estimation, be required reading for family practitioners. --Ted Bowman, Family Forum Reviews of this book: Dr. Boss describes [the] all-too-common phenomenon [of unresolved grief] as resulting from either of two circumstances: when the lost person is still physically present but emotionally absent or when the lost person is physically absent but still emotionally present. In addition to senility, physical presence but psychological absence may result, for example, when a person is suffering from a serious mental disorder like schizophrenia or depression or debilitating neurological damage from an accident or severe stroke, when a person abuses drugs or alcohol, when a child is autistic or when a spouse is a workaholic who is not really 'there' even when he or she is at home...Cases of physical absence with continuing psychological presence typically occur when a soldier is missing in action, when a child disappears and is not found, when a former lover or spouse is still very much missed, when a child 'loses' a parent to divorce or when people are separated from their loved ones by immigration...Professionals familiar with Dr. Boss's work emphasised that people suffering from ambiguous loss were not mentally ill, but were just stuck and needed help getting past the barrier or unresolved grief so that they could get on with their lives. --Asian Age Combining her talents as a compassionate family therapist and a creative researcher, Pauline Boss eloquently shows the many and complex ways that people can cope with the inevitable losses in contemporary family life. A wise book, and certain to become a classic. --Constance R. Ahrons, author of The Good Divorce A powerful and healing book. Families experiencing ambiguous loss will find strategies for seeing what aspects of their loved ones remain, and for understanding and grieving what they have lost. Pauline Boss offers us both insight and clarity. --Kathy Weingarten, Ph.D, The Family Institute of Cambridge, Harvard Medical School
Author: Ellen Frankel Paul Publisher: Cambridge University Press ISBN: 9780521589949 Category : Philosophy Languages : en Pages : 348
Book Description
Recent and ongoing developments in science and technology--such as the prevention and treatment of disease through genetics and the development of increasingly sophisticated computer systems with wide-ranging applications--hold out the promise of vastly improving the quality of human life, but they can also raise serious ethical, legal, and public policy questions. The thirteen essays in this volume address these questions and related issues from a variety of perspectives.
Author: Lynn Smith
Author: Lynn Smith
Author: Amy Bloom
Author: Sue Fagalde Lick
Author: Dennis Linn
Author: Bijal P. Trivedi
Author: Greg O'Brien
Author: 
Author: Pauline BOSS
Author: Ellen Frankel Paul
Author: Lynn Smith