Narrative Medicine in Hospice Care PDF Download

Author: Tara Flanagan
Publisher: Rowman & Littlefield
ISBN: 1498554636
Category : Philosophy
Languages : en
Pages : 161

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Book Description
Narrative medicine, an interdisciplinary field that brings together the studies of literature and medicine, offers both a way of understanding patient identity and a method for developing a clinician’s responsiveness to patients. While recognizing the value of narrative medicine in clinical encounters, including the ethical aspects of patient discourse, Tara Flanagan examines the limits of narrative practices for patients with cognitive and verbal deficits. In Narrative Medicine in Hospice Care: Identity, Practice, and Ethics through the Lens of Paul Ricoeur, Flanagan contends that the models of selfhood and care found in the work of Ricoeur can offer a framework for clinicians and caregivers regardless of the verbal and cognitive capabilities of a patient at the end of life. In particular, Ricoeur’s concept of patient identity connects with the narrative method of life review in hospice and offers an opportunity to address the religious and spiritual dimensions of the patient experience.

Author: Yasmin Gunaratnam
Publisher: OUP Oxford
ISBN: 0191006475
Category : Medical
Languages : en
Pages : 264

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Book Description
The use of narrative methods has a long history in palliative care, pioneered by Dame Cicely Saunders, founder of the modern hospice movement, Narrative and Stories in Health Care provides a vibrant, multidisciplinary examination of work with narrative and stories in contemporary health and social care, with a focus on the care of people who are ill and dying. It animates the academic literature with provocative 'real-world' examples from international contributors, including palliative care service users and those working in the social and human sciences, medicine, theology, and the creative arts. Narrative and Stories in Health Care addresses and clarifies core issues: What is a narrative? What is a story? What are some of the main methods and models that can be used and for what purposes? What practical and ethical dilemmas can the methods entail in work with illness, death and dying? As well as highlighting the power of stories to create new possibilities, the book also acknowledges the conceptual, methodological and ethnical problems and challenges inherent in narrative work. As the hospice and palliative care movement evolves to meet the challenges of 21st century health care, this fascinating book highlights how narratives and stories can be attended to in ways that are productive, ethical, and caring.

Author: Rita Charon
Publisher: Oxford University Press
ISBN: 0199360197
Category : Medical personnel and patient
Languages : en
Pages : 361

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Book Description
The Principles and Practice of Narrative Medicine articulates the ideas, methods, and practices of narrative medicine. Written by the originators of the field, this book provides the authoritative starting place for any clinicians or scholars committed to learning of and eventually teaching or practicing narrative medicine.

Author: David J. Bearison
Publisher: Oxford University Press, USA
ISBN: 0195389271
Category : Medical
Languages : en
Pages : 237

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Book Description
The Edge of Medicine tells the stories of dying children and their families, capturing the full range of uncertainties, hopes and disappointments, and ups and downs of children near the end of life. Dr. Bearison relies on narrative to bridge the disconnect among abstract theories, medical technologies, and clinical realities.

Author: Sunita Puri
Publisher: Viking
ISBN: 0735223319
Category : Biography & Autobiography
Languages : en
Pages : 322

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Book Description
"A ... memoir about how the essential parts of one young woman's early life--her mother's work as a surgeon and her spiritual practice--led her to become a doctor and to question the premise that medicine exists to prolong life at all costs."--

Author: Elaine Wittenberg-Lyles
Publisher: Hampton Press (NJ)
ISBN: 9781572739857
Category : Caregivers
Languages : en
Pages : 0

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Book Description
This remarkable work reveals and follows the intimate stories of several families facing terminal illness with and without palliative care. Examining their experiences of diagnosis and care from the prism of palliative care communication, it uses narrative description to identify the experiences of isolated, rescued, and comforted illness in an effort to reveal the deficits in our current communication and literacy practices between patient, family and clinician.

Author: Harvey Max Chochinov
Publisher: OUP USA
ISBN: 0195176219
Category : Medical
Languages : en
Pages : 216

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Book Description
Maintaining dignity for patients approaching death is a core principle of palliative care. Dignity therapy, a psychological intervention developed by Dr. Harvey Max Chochinov and his internationally lauded research group, has been designed specifically to address many of the psychological, existential, and spiritual challenges that patients and their families face as they grapple with the reality of life drawing to a close. In the first book to lay out the blueprint for this unique and meaningful intervention, Chochinov addresses one of the most important dimensions of being human. Being alive means being vulnerable and mortal; he argues that dignity therapy offers a way to preserve meaning and hope for patients approaching death. With history and foundations of dignity in care, and step by step guidance for readers interested in implementing the program, this volume illuminates how dignity therapy can change end-of-life experience for those about to die - and for those who will grieve their passing.

Author: Jennifer O'Brien
Publisher: Et Alia Press
ISBN: 9781944528096
Category :
Languages : en
Pages : 86

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Book Description
Everyone facing death--their own or a loved one's--benefits from this love story and practical guide in one. As a hospice doctor, Bob cared daily for dying patients. At home, his wife, Jen, listened to the stories of patients and families, layering her understanding of death with the early losses of her own brother and mother. Then, the man who had spent a 40-year career caregiving was diagnosed with advanced, metastatic cancer. An insightful blend of art and compassion, patience and endearing honesty, this book comprises Jen's digital art journal, which chronicles this time in their marriage. What began as a visceral, self-care compulsion within days of diagnosis became notes, collages, and images revealing the raw, luminescent reflections of a caregiver-turned-widow. Beyond the practical guidance and solace offered by an insider, Jen's journal reminds us how to live presently during our darkest hours, honor grief, and discover--even after devastating loss--ways to forge forward.

Author: Rita Charon Professor of Clinical Medicine Columbia University College of Physicians and Surgeons
Publisher: Oxford University Press, USA
ISBN: 0199759855
Category : Medical
Languages : en
Pages : 288

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Book Description
Narrative medicine has emerged in response to a commodified health care system that places corporate and bureaucratic concerns over the needs of the patient. Generated from a confluence of sources including humanities and medicine, primary care medicine, narratology, and the study of doctor-patient relationships, narrative medicine is medicine practiced with the competence to recognize, absorb, interpret, and be moved by the stories of illness. By placing events in temporal order, with beginnings, middles, and ends, and by establishing connections among things using metaphor and figural language, narrative medicine helps doctors to recognize patients and diseases, convey knowledge, accompany patients through the ordeals of illness--and according to Rita Charon, can ultimately lead to more humane, ethical, and effective health care. Trained in medicine and in literary studies, Rita Charon is a pioneer of and authority on the emerging field of narrative medicine. In this important and long-awaited book she provides a comprehensive and systematic introduction to the conceptual principles underlying narrative medicine, as well as a practical guide for implementing narrative methods in health care. A true milestone in the field, it will interest general readers, and experts in medicine and humanities, and literary theory.

Author: David Barnard
Publisher: Oxford University Press
ISBN: 0199748837
Category : Family & Relationships
Languages : en
Pages : 464

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Book Description
Crossing Over provides a unique view of patients, families, and their caregivers striving together to maintain comfort and hope in the face of incurable illness. The narratives weave together emotions, physical symptoms, spiritual concerns, and the stresses of family life, as well as the professional and personal challenges of providing hospice and palliative care. Based on a vast amount of participant-observation and in-depth interviews, Crossing Over moves far beyond dry technical manuals for symptom control, and tired clichés about death with dignity, to depict the sights, sounds, tastes, and smells of the daily in patients homes and the palliative care unit. It captures the breathtaking diversity of people's aspirations and ideals as they face death, and the views of the professionals who care for them. Anger and fear, tenderness and reconciliation, jealousy and love, social support and falling through the cracks, unexpected courage and unshakable faith-- all of these are part of facing death in late twentieth-century North America, and this book brings them to life in an extraordinary portrait of the processes of giving and receiving palliative care.