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Author: Jurgen Grotz Publisher: Palgrave Macmillan ISBN: 9783030552916 Category : Social Science Languages : en Pages : 163
Book Description
This book provides a comprehensive overview of the latest theory and practice on Patient and Public Involvement (PPI) in research. Its seven chapters cover the historical and conceptual background; the various ways implementation can be approached and how they are put into practice; ethical considerations and critical perspectives, including on the potentially negative impacts of PPI; approaches to meaningful evaluation; a step by-step guide to planning PPI and conclusions with considerations for future research. Drawing on current literature, this book provides an essential reference work for research students and all who want to better understand PPI in practice. It offers exercises to address key questions, case examples and a checklist for planning PPI and includes a valuable glossary of terms.
Author: Jurgen Grotz Publisher: Palgrave Macmillan ISBN: 9783030552916 Category : Social Science Languages : en Pages : 163
Book Description
This book provides a comprehensive overview of the latest theory and practice on Patient and Public Involvement (PPI) in research. Its seven chapters cover the historical and conceptual background; the various ways implementation can be approached and how they are put into practice; ethical considerations and critical perspectives, including on the potentially negative impacts of PPI; approaches to meaningful evaluation; a step by-step guide to planning PPI and conclusions with considerations for future research. Drawing on current literature, this book provides an essential reference work for research students and all who want to better understand PPI in practice. It offers exercises to address key questions, case examples and a checklist for planning PPI and includes a valuable glossary of terms.
Author: Jurgen Grotz Publisher: Palgrave Macmillan ISBN: 9783030552886 Category : Social Science Languages : en Pages : 163
Book Description
This book provides a comprehensive overview of the latest theory and practice on Patient and Public Involvement (PPI) in research. Its seven chapters cover the historical and conceptual background; the various ways implementation can be approached and how they are put into practice; ethical considerations and critical perspectives, including on the potentially negative impacts of PPI; approaches to meaningful evaluation; a step by-step guide to planning PPI and conclusions with considerations for future research. Drawing on current literature, this book provides an essential reference work for research students and all who want to better understand PPI in practice. It offers exercises to address key questions, case examples and a checklist for planning PPI and includes a valuable glossary of terms.
Author: Penny Bee Publisher: Manchester University Press ISBN: 152613652X Category : Science Languages : en Pages : 145
Book Description
This electronic version has been made available under a Creative Commons (BY-NC-ND) open access license. This book is written for patients and members of the public who want to understand more about the approaches, methods and language used by health-services researchers. Patient and public involvement (PPI) in research is now a requirement of most major health-research programmes, and this book is designed to equip these individuals with the knowledge and skills necessary for meaningful participation. Edited by award-winning mental-health researchers, the book has been produced in partnership with mental-health-service users and carers with experience of research involvement. It includes personal reflections from these individuals alongside detailed information on quantitative, qualitative and health-economics research methods.
Author: Jenny Popay Publisher: Routledge ISBN: 1134857187 Category : Health & Fitness Languages : en Pages : 237
Book Description
Researching the People's Health examines the different ways in which needs are assessed and health care is organized, prioritized and delivered in circumstances of rapid change in patterns of health and illness. The book also addresses the issue of relationships between lay and expert knowledge.
Author: Institute of Medicine Publisher: National Academies Press ISBN: 0309124999 Category : Computers Languages : en Pages : 334
Book Description
In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
Author: Korrie de Koning Publisher: ISBN: Category : Public health Languages : en Pages : 264
Book Description
Participatory research (PR) has already gained considerable importance both as a research strategy and as an educational process in recent years. This volume breaks new ground by presenting the experience and reflections of academics and practitioners, from both North and South, who are using this approach in the field of health. Contributors place PR in its historical and theoretical context. They examine issues of training and practice, drawing on experiences from Africa, Asia, Latin America, the USA and Europe. The case studies make clear the complexities and contradictions, as well as common experiences, which practitioners confront in diverse social, economic and political contexts. Questions of equity in terms of gender, race and class come to the fore, as do insights into the qualities, skills and attititudes required of practitioners. Participatory Rural Appraisal (PRA) methods are described in a number of case studies with particular stress being laid on ethical considerations, reliability of the results, and how to integrate PRA methods into a participatory research process.
Author: Karen M. Facey Publisher: Springer ISBN: 9811040680 Category : Medical Languages : en Pages : 434
Book Description
This is the first book to offer a comprehensive guide to involving patients in health technology assessment (HTA). Defining patient involvement as patient participation in the HTA process and research into patient aspects, this book includes detailed explanations of approaches to participation and research, as well as case studies. Patient Involvement in HTA enables researchers, postgraduate students, HTA professionals and experts in the HTA community to study these complementary ways of taking account of patients’ knowledge, experiences, needs and preferences. Part I includes chapters discussing the ethical rationale, terminology, patient-based evidence, participation and patient input. Part II sets out methodology including: Qualitative Evidence Synthesis, Discrete Choice Experiments, Analytical Hierarchy Processes, Ethnographic Fieldwork, Deliberative Methods, Social Media Analysis, Patient-Reported Outcome Measures, patients as collaborative research partners and evaluation. Part III contains 15 case studies setting out current activities by HTA bodies on five continents, health technology developers and patient organisations. Each part includes discussion chapters from leading experts in patient involvement. A final chapter reflects on the need to clearly define the goals for patient involvement within the context of the HTA to identify the optimal approach. With cohesive contributions from more than 80 authors from a variety of disciplines around the globe, it is hoped this book will serve as a catalyst for collaboration to further develop patient involvement to improve HTA. "If you’re not involving patients, you're not doing HTA!" - Dr. Brian O’Rourke, President and CEO of CADTH, Chair of INAHTA
Author: David Horton Smith Publisher: Springer ISBN: 1137263172 Category : Social Science Languages : en Pages : 1414
Book Description
Written by over 200 leading experts from over seventy countries, this handbook provides a comprehensive, state-of-the-art overview of the latest theory and research on volunteering, civic participation and nonprofit membership associations. The first handbook on the subject to be truly multinational and interdisciplinary in its authorship, it represents a major milestone for the discipline. Each chapter follows a rigorous theoretical structure examining definitions, historical background, key analytical issues, usable knowledge, and future trends and required research. The nine parts of the handbook cover the historical and conceptual background of the discipline; special types of volunteering; the major activity areas of volunteering and associations; influences on volunteering and association participation; the internal structures of associations; the internal processes of associations; the external environments of associations; the scope and impacts of volunteering and associations; and conclusions and future prospects. This handbook provides an essential reference work for third-sector research and practice, including a valuable glossary of terms defining over eighty key concepts. Sponsored by the International Council of Voluntarism, Civil Society, and Social Economy Researcher Associations (ICSERA; www.icsera.org), it will appeal to scholars, policymakers and practitioners, and helps to define the emergent academic discipline of voluntaristics.
Author: Jurgen Grotz
Author: Jurgen Grotz
Author: Jurgen Grotz
Author: Penny Bee
Author: Ellen Nolte
Author: Jenny Popay
Author: Institute of Medicine
Author: Great Britain: Department of Health
Author: Korrie de Koning
Author: Karen M. Facey
Author: David Horton Smith