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Author: Kenny De Meirleir Publisher: CRC Press ISBN: 9780789035325 Category : Medical Languages : en Pages : 146
Book Description
Help young CFS sufferers cope with this debilitating illness Chronic Fatigue Syndrome (CFS) is a debilitating illness that can have devastating effects for those afflicted, especially children and adolescents. Pediatric Chronic Fatigue Syndrome discusses this growing problem and its many facets in depth, including the mounting prevalence of incidents in the population and detailed explanations of diagnostic criteria. Case studies are provided to illustrate the issues those afflicted with CFS face, such as increasing isolation, decreasing school attendance, the length of time it typically takes to get diagnosed, and the impact on leisure activities. Current criteria for CFS were designed for use in adults, with few studies done on assessing how appropriate these criteria are for children and adolescents. Pediatric Chronic Fatigue Syndrome provides the criteria for first-time diagnosis of pediatric CFS and includes practical recommendations developed by the International Association of Chronic Fatigue Syndrome Pediatric Case Definition Working Group. This book closely examines the potential impact that Chronic Fatigue Syndrome has on child and adolescent functioning, psychological factors, social factors, and the suffering endured from symptoms. Guidelines are provided on ways ME-CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) can be addressed in primary practice. Topics in Pediatric Chronic Fatigue Syndrome include: ME/CFS CACFS (Chronic Fatigues Syndrome in Children and Adolescents) the common problem of Munchausen-by-proxy research on the psychosocial, family, and physical functioning comparing children and adolescents with CFS and those without CFS using theory in clinical practice guidelines on how ME/CFS can be addressed in primary practice overview of CFS aspects for healthcare professionals who may be called on to diagnose or treat the illness and more Pediatric Chronic Fatigue Syndrome is timely, important information for health professionals, researchers, counselors, caregivers, parents of children and adolescents with CFS, and patients with CFS.
Author: Kenny De Meirleir Publisher: CRC Press ISBN: 9780789035325 Category : Medical Languages : en Pages : 146
Book Description
Help young CFS sufferers cope with this debilitating illness Chronic Fatigue Syndrome (CFS) is a debilitating illness that can have devastating effects for those afflicted, especially children and adolescents. Pediatric Chronic Fatigue Syndrome discusses this growing problem and its many facets in depth, including the mounting prevalence of incidents in the population and detailed explanations of diagnostic criteria. Case studies are provided to illustrate the issues those afflicted with CFS face, such as increasing isolation, decreasing school attendance, the length of time it typically takes to get diagnosed, and the impact on leisure activities. Current criteria for CFS were designed for use in adults, with few studies done on assessing how appropriate these criteria are for children and adolescents. Pediatric Chronic Fatigue Syndrome provides the criteria for first-time diagnosis of pediatric CFS and includes practical recommendations developed by the International Association of Chronic Fatigue Syndrome Pediatric Case Definition Working Group. This book closely examines the potential impact that Chronic Fatigue Syndrome has on child and adolescent functioning, psychological factors, social factors, and the suffering endured from symptoms. Guidelines are provided on ways ME-CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) can be addressed in primary practice. Topics in Pediatric Chronic Fatigue Syndrome include: ME/CFS CACFS (Chronic Fatigues Syndrome in Children and Adolescents) the common problem of Munchausen-by-proxy research on the psychosocial, family, and physical functioning comparing children and adolescents with CFS and those without CFS using theory in clinical practice guidelines on how ME/CFS can be addressed in primary practice overview of CFS aspects for healthcare professionals who may be called on to diagnose or treat the illness and more Pediatric Chronic Fatigue Syndrome is timely, important information for health professionals, researchers, counselors, caregivers, parents of children and adolescents with CFS, and patients with CFS.
Author: Institute of Medicine Publisher: National Academies Press ISBN: 0309316928 Category : Medical Languages : en Pages : 304
Book Description
Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.
Author: Y. Watanabe Publisher: Springer Science & Business Media ISBN: 9784431734642 Category : Medical Languages : ja Pages : 596
Book Description
To provide a forum for discussion, the International Conference on Fatigue Science was organized, the first being held in 2002 in Sandhamn, Sweden, and the second in 2005 in Karuizawa, Japan. Subsequently it was decided that the papers presented at the two conferences should be collected. The result is an authoritative guide to recent progress in the molecular and neural mechanisms of fatigue and in the development of the ways to prevent and overcome fatigue and chronic fatigue.
Author: Katharine Rimes Publisher: Routledge ISBN: 1317605373 Category : Psychology Languages : en Pages : 140
Book Description
Overcoming Chronic Fatigue in Young People provides an effective evidence-based, step-by-step guide to managing and overcoming chronic fatigue. The highly-experienced experts Katharine Rimes and Trudie Chalder, present an accessible and practical manual aimed at young people, with downloadable material (available online) to support recovery. The book also includes a guide for parents and a helpful resources section. It is recommended for any young person struggling with chronic fatigue, as well as parents and professionals. Currently, there is no other evidence-based self-help guide available on chronic fatigue aimed at young people. This innovative book contains detailed advice for tailoring a fatigue recovery programme to the individual and shows the health professional how to do this. Topics covered include: Sleep, exercise, coping with stress and school. Based on cognitive behaviour therapy, a treatment approach supported by research evidence, Katherine Rimes and Trudie Chalder have used this guide in specialist CFS / ME service for many years with positive results as reported by both patients and parents. Overcoming Chronic Fatigue in Young People is aimed at young people with CFS / ME but people with chronic fatigue caused by other conditions will also find it invaluable. It is an essential resource for parents, families and health care professionals in the treatment of their clients.
Author: Kenneth J. Friedman Publisher: Frontiers Media SA ISBN: 2889632067 Category : Languages : en Pages : 266
Book Description
In 2015, the Institute of Medicine (USA) issued a report critical of the research effort and clinical care for ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) formerly known as Chronic Fatigue Syndrome (CFS) and Chronic Fatigue Immune Deficiency Syndrome (CFIDS). While worldwide investigation into the cause and nature of ME/CFS remains disproportionately small, and treatment remains symptomatic and controversial, modest research continues in all aspects of this disease: epidemiology, possible infectious origins and other triggers, possible involvement of genetics, metabolism, and microbiome, influence of co-morbid conditions, and more. Treatment of patients consists of providing symptomatic relief. Guidance in doing so is provided for the clinician. School-age children require not only treatment but, as revealed in a 25-year retrospective study, continued engagement with peers and social activity. This e-book explores the breadth and depth of current ME/CFS research and clinical care. Its impact for other chronic, complex illnesses should not be overlooked.
Author: David S Bell Publisher: CRC Press ISBN: 9780789006318 Category : Medical Languages : en Pages : 161
Book Description
A Parents’Guide to CFIDS is the only complete book for parents of children with CFIDS (Chronic Fatigue Immune Dysfunction Syndrome). Written in a friendly, personal manner by parents for parents, A Parent?s Guide to CFIDS combines medical, parental, and personal experiences designed to minimize the negative effects of socialization and education on children with CFIDS. This guide will assist you in understanding CFIDS, also known as Fibromyalgia (FM) and Myalgic Encephalomyelitis (ME), one of the most complicated illnesses in medical history. You will learn how to help your child overcome the major academic challenges of CFIDS and the socialization issues inflicted by being cut off from friends and peers at a critical stage of development. Some of the topics covered in A Parent?s Guide to CFIDS include: options for academic planning how to be your child?s number one advocate balancing your family life when you have a child with CFIDS helping your CFIDS child develop socially with support groups young people with CFIDS speak out about their experiences deciding how much physical activity your child can handle letters to the school from the physician 75 tips for coping with inflicted children, from pain to schoolwork A Parents’Guide to CFIDS is written by a doctor, educators, and parents of children with CFIDS, and guides parents and educators in understanding, coping with, and helping a child with CFIDS live a better life. This roadmap to recovery covers everything from medical terms and doctor visits to assisting with schoolwork and focusing on normal development to improve your child’s life.
Author: Melinda Malott Publisher: Xlibris Corporation ISBN: 1499094442 Category : Juvenile Fiction Languages : en Pages : 24
Book Description
This is the book we’ve been waiting for—a story for children of parents with Fibromyalgia or Chronic Fatigue Syndrome. In fact, I plan to buy a copy for all my loved ones, so they’ll better understand what my life is like. It all depends on how many marbles are in my jar each day—the perfect metaphor for explaining the unpredictability and the ups and downs of Fibromyalgia and CFS. At the end of the book, Malott writes, “a heart full of love is better than a jar full of marbles any day.” Not only is this book informative and insightful, it’s a heart full of love in itself. —Toni Bernhard, author of How to Be Sick A mom uses a brilliant jar-and-marble analogy to teach her son about her limitations related to chronic fatigue syndrome (CFS) and fibromyalgia. The book uses marbles, a toy all children are familiar with, as a measure of the mother’s limited energy. Using a jar and some marbles, the author conveys difficult concepts in terms that children can understand. These concepts include taking preemptive rests to have more energy later, finding alternate ways to perform tasks that use less energy, and postexertional malaise. The concepts in the book are relevant to someone with one or both illnesses, and it can be applied to other physically limiting conditions as well. The book reminds the reader that although illness may limit a mother’s activities, it never diminishes a mother’s love for her children. The book is fun and yet realistic and will capture your child’s heart.
Author: Nirbhay N Singh Publisher: Elsevier ISBN: 9780080441054 Category : Architecture Languages : en Pages : 566
Book Description
The papers included in this volume highlight research and practice in child and adolescent mental health from around the world. As systems of care are different across countries and cultures, it is imperative that knowledge is shared and lessons learned. The biennial Elsevier conference on Child and Adolescent Mental Health is designed to provide a forum for mental health and educational experts from various disciplines and countries.
Author: Peggy Munson Publisher: Routledge ISBN: 1135411743 Category : Medical Languages : en Pages : 302
Book Description
Develop a better understanding of what CFS/CFIDS sufferers are going through! In the 1980s, a strange emerging epidemic baffled doctors in Incline Village, Nevada. Dismissed by the media as “The Yuppie Flu,” Chronic Fatigue Immune Dysfunction Syndrome (CFIDS) turned out to be neither a faddish disease of the wealthy nor a passing trend, but rather a growing worldwide epidemic of devastating proportions. In the voices of a South African journalist, a former marathon runner, a teenage girl, a public health activist living on the edge of race and gender, a cancer patient neglected by doctors because of disdain for her chronic illness, and a theologian relearning the art of spiritual empathy, the people who share their stories in Stricken: Voices from the Hidden Epidemic of Chronic Fatigue Syndrome defy cultural stereotypes and explore the complex social and political dynamics of this hidden epidemic. Through their distinct points of view, we feel the grief and hope of those stricken with CFIDS and learn of the complex nature of this misunderstood disorder. These are compelling stories about a quiet and baffling epidemic. The first American anthology to contain stories from a diverse range of people with CFIDS, Stricken offers an intimate look at the political and social issues surrounding CFIDS, as told by those who are living through this ordeal. Stricken addresses several issues, such as: why some doctors still do not believe CFIDS is real how the disease is mocked in the media myths about this illness the personal fight for medical or public recognition the skepticism and hope that is felt by the ever-growing number of CFIDS sufferers Stricken confronts fascinating CFIDS issues such as the Kevorkian suicides, accusations of Munchausen Syndrome By Proxy, Gulf War Syndrome, the role of storytelling in a memory-impaired patient movement, and the feasibility of mass activism in a disabled population. With contributions from Pulitzer-prize nominated writer Susan Griffin, renowned health writer and radio host Gary Null, well-known feminist activist Joan Nestle, and award-winning poet and essayist Floyd Skloot, Stricken is an eloquent testament to the heroism, defiance, and diversity of the CFIDS community.
Author: Kenny De Meirleir
Author: Kenny De Meirleir
Author: Institute of Medicine
Author: Jane Meschan Foy
Author: Y. Watanabe
Author: Katharine Rimes
Author: Kenneth J. Friedman
Author: David S Bell
Author: Melinda Malott
Author: Nirbhay N Singh
Author: Peggy Munson