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Pennhurst and the Struggle for Disability Rights

Pennhurst and the Struggle for Disability Rights PDF Author: Dennis B. Downey
Publisher: Penn State Press
ISBN: 027108636X
Category : Social Science
Languages : en
Pages : 148

Book Description
Conceived in the era of eugenics as a solution to what was termed the “problem of the feeble-minded,” state-operated institutions subjected people with intellectual and developmental disabilities to a life of compulsory incarceration. One of nearly 300 such facilities in the United States, Pennhurst State School and Hospital was initially hailed as a “model institution” but was later revealed to be a nightmare, where medical experimentation and physical and psychological abuse were rampant. At its peak, more than 3,500 residents were confined at Pennhurst, supervised by a staff of fewer than 600. Using a blended narrative of essays and first-person accounts, this history of Pennhurst examines the institution from its founding during an age of Progressive reform to its present-day exploitation as a controversial Halloween attraction. In doing so, it traces a decades-long battle to reform the abhorrent school and hospital and reveals its role as a catalyst for the disability rights movement. Beginning in the 1950s, parent-advocates, social workers, and attorneys joined forces to challenge the dehumanizing conditions at Pennhurst. Their groundbreaking advocacy, accelerated in 1968 by the explosive televised exposé Suffer the Little Children, laid the foundation for lawsuits that transformed American jurisprudence and ended mass institutionalization in the United States. As a result, Pennhurst became a symbolic force in the disability civil rights movement in America and around the world. Extensively researched and featuring the stories of survivors, parents, and advocates, this compelling history will appeal both to those with connections to Pennhurst and to anyone interested in the history of institutionalization and the disability rights movement.

Pennhurst and the Struggle for Disability Rights

Pennhurst and the Struggle for Disability Rights PDF Author: Dennis B. Downey
Publisher: Penn State Press
ISBN: 027108636X
Category : Social Science
Languages : en
Pages : 148

Book Description
Conceived in the era of eugenics as a solution to what was termed the “problem of the feeble-minded,” state-operated institutions subjected people with intellectual and developmental disabilities to a life of compulsory incarceration. One of nearly 300 such facilities in the United States, Pennhurst State School and Hospital was initially hailed as a “model institution” but was later revealed to be a nightmare, where medical experimentation and physical and psychological abuse were rampant. At its peak, more than 3,500 residents were confined at Pennhurst, supervised by a staff of fewer than 600. Using a blended narrative of essays and first-person accounts, this history of Pennhurst examines the institution from its founding during an age of Progressive reform to its present-day exploitation as a controversial Halloween attraction. In doing so, it traces a decades-long battle to reform the abhorrent school and hospital and reveals its role as a catalyst for the disability rights movement. Beginning in the 1950s, parent-advocates, social workers, and attorneys joined forces to challenge the dehumanizing conditions at Pennhurst. Their groundbreaking advocacy, accelerated in 1968 by the explosive televised exposé Suffer the Little Children, laid the foundation for lawsuits that transformed American jurisprudence and ended mass institutionalization in the United States. As a result, Pennhurst became a symbolic force in the disability civil rights movement in America and around the world. Extensively researched and featuring the stories of survivors, parents, and advocates, this compelling history will appeal both to those with connections to Pennhurst and to anyone interested in the history of institutionalization and the disability rights movement.

Pennhurst State School and Hospital

Pennhurst State School and Hospital PDF Author: J. Gregory Pirmann
Publisher: Arcadia Publishing
ISBN: 1439651949
Category : Medical
Languages : en
Pages : 128

Book Description
For nearly 80 years, Pennhurst State School and Hospital was a reminder of how society viewed and treated people with intellectual disabilities. Over its existence, Pennhurst was home to more than 10,600 people. Many spent decades there, working to keep the institution running by performing various jobs. While some enjoyed the lives they had fashioned for themselves at Pennhurst, for many others, life there was crushing. Pennhurst also played a central role in the lives of its employees and in the rural Pennsylvania community where it was located. Controversy plagued the institution for its entire existence, and it is remembered primarily as a place where bad things happened. However, it was much more than that. This book provides a window into that separate world, reminding those who were part of it of what they saw and did there and giving those who know only what they have heard or seen a different picture of what Pennhurst truly was.

The Human Rights of Persons with Intellectual Disabilities

The Human Rights of Persons with Intellectual Disabilities PDF Author: Stanley S. Herr
Publisher: Oxford University Press, USA
ISBN: 9780199264513
Category : Law
Languages : en
Pages : 582

Book Description
Inequality: Marcia H. Rioux

Ableist Rhetoric

Ableist Rhetoric PDF Author: James L. Cherney
Publisher: Penn State Press
ISBN: 0271085274
Category : Language Arts & Disciplines
Languages : en
Pages : 188

Book Description
Ableism, a form of discrimination that elevates “able” bodies over those perceived as less capable, remains one of the most widespread areas of systematic and explicit discrimination in Western culture. Yet in contrast to the substantial body of scholarly work on racism, sexism, classism, and heterosexism, ableism remains undertheorized and underexposed. In this book, James L. Cherney takes a rhetorical approach to the study of ableism to reveal how it has worked its way into our everyday understanding of disability. Ableist Rhetoric argues that ableism is learned and transmitted through the ways we speak about those with disabilities. Through a series of textual case studies, Cherney identifies three rhetorical norms that help illustrate the widespread influence of ableist ideas in society. He explores the notion that “deviance is evil” by analyzing the possession narratives of Cotton Mather and the modern horror touchstone The Exorcist. He then considers whether “normal is natural” in Aristotle’s Generation of Animals and in the cultural debate over cochlear implants. Finally, he shows how the norm “body is able” operates in Alexander Graham Bell’s writings on eugenics and in the legal cases brought by disabled athletes Casey Martin and Oscar Pistorius. These three simple equivalencies play complex roles within the social institutions of religion, medicine, law, and sport. Cherney concludes by calling for a rhetorical model of disability, which, he argues, will provide a shift in orientation to challenge ableism’s epistemic, ideological, and visual components. Accessible and compelling, this groundbreaking book will appeal to scholars of rhetoric and of disability studies as well as to disability rights advocates.

Uncanny Bodies

Uncanny Bodies PDF Author: Scott T. Smith
Publisher: Penn State Press
ISBN: 0271086300
Category : Comics & Graphic Novels
Languages : en
Pages : 255

Book Description
Superhero comics reckon with issues of corporeal control. And while they commonly deal in characters of exceptional or superhuman ability, they have also shown an increasing attention and sensitivity to diverse forms of disability, both physical and cognitive. The essays in this collection reveal how the superhero genre, in fusing fantasy with realism, provides a visual forum for engaging with issues of disability and intersectional identity (race, ethnicity, class, gender, and sexuality) and helps to imagine different ways of being in the world. Working from the premise that the theoretical mode of the uncanny, with its interest in what is simultaneously known and unknown, ordinary and extraordinary, opens new ways to think about categories and markers of identity, Uncanny Bodies explores how continuums of ability in superhero comics can reflect, resist, or reevaluate broader cultural conceptions about disability. The chapters focus on lesser-known characters—such as Echo, Omega the Unknown, and the Silver Scorpion—as well as the famous Barbara Gordon and the protagonist of the acclaimed series Hawkeye, whose superheroic uncanniness provides a counterpoint to constructs of normalcy. Several essays explore how superhero comics can provide a vocabulary and discourse for conceptualizing disability more broadly. Thoughtful and challenging, this eye-opening examination of superhero comics breaks new ground in disability studies and scholarship in popular culture. In addition to the editors, the contributors are Sarah Bowden, Charlie Christie, Sarah Gibbons, Andrew Godfrey-Meers, Marit Hanson, Charles Hatfield, Naja Later, Lauren O’Connor, Daniel J. O'Rourke, Daniel Pinti, Lauranne Poharec, and Deleasa Randall-Griffiths.

The Oxford Handbook of Disability History

The Oxford Handbook of Disability History PDF Author: Michael A. Rembis
Publisher: Oxford University Press
ISBN: 0190234954
Category : History
Languages : en
Pages : 553

Book Description
This Handbook brings together twenty-nine authors from around the world, each expert in a different area within the history of disability. This collection of new and original essays forms a benchmark in a field of historical inquiry that has been growing and maturing over the last thirty years. It is the first book to gather critical essays that incorporate studies from South and East Asia, eastern and western Europe, Australia, North America, and the Arab world. This Handbook is unique among other disability history texts in that it engages simultaneously in methodological and historiographic debates and in a further articulation and analysis of the lived experiences of disabled people.

Roland Johnson's Lost in a Desert World: An Autobiography

Roland Johnson's Lost in a Desert World: An Autobiography PDF Author: Karl Williams
Publisher:
ISBN: 9780578730820
Category : Biography & Autobiography
Languages : en
Pages : 178

Book Description
Roland Johnson's autobiography is the triumphant story of a man who rose above an intellectual disability and devastating abuse to become a prominent leader in the self-advocacy movement. As a child, Roland was sent away to live at the infamous Pennhurst State School in Pennsylvania, where he was sexually assaulted and forced to do unpaid manual labor. When he finally got out, he discovered the "real world" had no place for people like him - people who weren't considered normal or valuable by societal standards. Through a hospital counseling program, Roland ultimately began to find his voice. He discovered an ability to speak his truth and to fight for other people with disabilities. He would become president of Speaking for Ourselves and bring wide-scale awareness to the struggles faced by people with disabilities, as well as the unique gifts those same people have to offer. Lost in a Desert World brings you into Roland's life through his own voice and both encourages and challenges you to connect to your own humanity as a means of connecting with the humanity present in all people. Roland Johnson was a man of great courage, vision, and determination. He had an alternate kind of intelligence - one not based on what we call intellect. In Roland Johnson's world, understanding - one person for another - is the way of the future, the only route to true freedom. CRITICAL PRAISE "Roland Johnson has an important story to tell. In writing this truth-telling autobiography, he becomes a powerful witness to the cost of segregation and the hope of community." - Joseph P. Shapiro, author of No Pity: People with Disabilities Forging a New Civil Rights Movement "Roland Johnson was a friend and a hero of mine. He was a great pioneer of the frontier of human being. Read his book." - Justin Dart, father of the ADA, Americans With Disabilities Act, and Chairperson of the President's Committee on Employment of People with Disabilities under President Bush "Roland Johnson was a good and true man whose friendship I cherished. He was a teacher to many of us, and now this book will carry his voice across the country." - Gunnar Dybwad, internationally respected advocate and past president of the International League of Societies for Persons with Mental Handicaps "Roland is a man who accepted you for who you were. He was a friend to everyone and wanted to help people live their dreams and have control over their lives. It was an honor to have him as my friend." - Tia Nelis, Chair of the Board of Self-Advocates Becoming Empowered (SABE) "It is rare, even in fiction let alone autobiography, when an author's words leap off the page through the ear to awaken the reader's heart. I never knew Roland Johnson. But thanks to Karl Williams, I am able to know Roland's playful spirit, his soul full of knowing, the truth of his experience. Bravo to both." - Lucy Gwin, Mouth Magazine "... Intimate and vivid portrayal ... Roland Johnson's autobiography ... breaks new ground regarding the authenticity with which it projects his voice ... Karl Williams' preservation of Roland's words, and Roland's voice, his unique manner of speaking intact, shines new light on the meaning of 'speaking for ourselves.' ... (A) work of pioneering authenticity ..." - Melissa Probst, AAMR Journal "Lost In a Desert World is so good and Roland's talking is so much like him, it felt like I was in the same room with him again ... Loved every minute of it ... It made me want to reach out and hug him ..." - Robert Perske, Author

Ghosts of Mayflower

Ghosts of Mayflower PDF Author: Tamera Lawrence
Publisher:
ISBN: 9781478718055
Category : Biography & Autobiography
Languages : en
Pages : 124

Book Description
A nurse who gives invisible shots, a girl who likes to dart into corners and a man who still sits in the common room are just three of the spirits haunting the Pennhurst Asylum in Spring City, Pennsylvania. How do I know that? I have spent the past Halloween season working in the Mayflower building, 2nd floor and have witnessed the paranormal activity first hand. Over twenty-five years ago, Pennhurst State School and Mental Hospital was closed down due to resident abuse. Today Pennhurst has been turned into a Halloween attraction. I took a job as an orderly working in the Mayflower building, one of the most spiritually active of all the buildings. People are fascinated with Pennhurst and want to know more of its past and its present. Intrigued, I decided to do my own research. I have written a book bringing the past and present together to not just entertain, but also enlighten.

Decarcerating Disability

Decarcerating Disability PDF Author: Liat Ben-Moshe
Publisher: U of Minnesota Press
ISBN: 1452963509
Category : Social Science
Languages : en
Pages : 328

Book Description
This vital addition to carceral, prison, and disability studies draws important new links between deinstitutionalization and decarceration Prison abolition and decarceration are increasingly debated, but it is often without taking into account the largest exodus of people from carceral facilities in the twentieth century: the closure of disability institutions and psychiatric hospitals. Decarcerating Disability provides a much-needed corrective, combining a genealogy of deinstitutionalization with critiques of the current prison system. Liat Ben-Moshe provides groundbreaking case studies that show how abolition is not an unattainable goal but rather a reality, and how it plays out in different arenas of incarceration—antipsychiatry, the field of intellectual disabilities, and the fight against the prison-industrial complex. Ben-Moshe discusses a range of topics, including why deinstitutionalization is often wrongly blamed for the rise in incarceration; who resists decarceration and deinstitutionalization, and the coalitions opposing such resistance; and how understanding deinstitutionalization as a form of residential integration makes visible intersections with racial desegregation. By connecting deinstitutionalization with prison abolition, Decarcerating Disability also illuminates some of the limitations of disability rights and inclusion discourses, as well as tactics such as litigation, in securing freedom. Decarcerating Disability’s rich analysis of lived experience, history, and culture helps to chart a way out of a failing system of incarceration.

A Disability History of the United States

A Disability History of the United States PDF Author: Kim E. Nielsen
Publisher: Beacon Press
ISBN: 0807022039
Category : Social Science
Languages : en
Pages : 290

Book Description
The first book to cover the entirety of disability history, from pre-1492 to the present Disability is not just the story of someone we love or the story of whom we may become; rather it is undoubtedly the story of our nation. Covering the entirety of US history from pre-1492 to the present, A Disability History of the United States is the first book to place the experiences of people with disabilities at the center of the American narrative. In many ways, it’s a familiar telling. In other ways, however, it is a radical repositioning of US history. By doing so, the book casts new light on familiar stories, such as slavery and immigration, while breaking ground about the ties between nativism and oralism in the late nineteenth century and the role of ableism in the development of democracy. A Disability History of the United States pulls from primary-source documents and social histories to retell American history through the eyes, words, and impressions of the people who lived it. As historian and disability scholar Nielsen argues, to understand disability history isn’t to narrowly focus on a series of individual triumphs but rather to examine mass movements and pivotal daily events through the lens of varied experiences. Throughout the book, Nielsen deftly illustrates how concepts of disability have deeply shaped the American experience—from deciding who was allowed to immigrate to establishing labor laws and justifying slavery and gender discrimination. Included are absorbing—at times horrific—narratives of blinded slaves being thrown overboard and women being involuntarily sterilized, as well as triumphant accounts of disabled miners organizing strikes and disability rights activists picketing Washington. Engrossing and profound, A Disability History of the United States fundamentally reinterprets how we view our nation’s past: from a stifling master narrative to a shared history that encompasses us all.