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Author: Chris Kaposy Publisher: MIT Press ISBN: 0262546248 Category : Science Languages : en Pages : 237
Book Description
An argument that more people should have children with Down syndrome, written from a pro-choice, disability-positive perspective. The rate at which parents choose to terminate a pregnancy when prenatal tests indicate that the fetus has Down syndrome is between 60 and 90 percent. In Choosing Down Syndrome, Chris Kaposy offers a carefully reasoned ethical argument in favor of choosing to have such a child. Arguing from a pro-choice, disability-positive perspective, Kaposy makes the case that there is a common social bias against cognitive disability that influences decisions about prenatal testing and terminating pregnancies, and that more people should resist this bias by having children with Down syndrome. Drawing on accounts by parents of children with Down syndrome, and arguing for their objectivity, Kaposy finds that these parents see themselves and their families as having benefitted from having a child with Down syndrome. To counter those who might characterize these accounts as based on self-deception or expressing adaptive preference, Kaposy cites supporting evidence, including divorce rates and observational studies showing that families including children with Down syndrome typically function well. Himself the father of a child with Down syndrome, Kaposy argues that cognitive disability associated with Down syndrome does not lead to diminished well-being. He argues further that parental expectations are influenced by neoliberal ideologies that unduly focus on the supposed diminished economic potential of a person with Down syndrome. Kaposy does not advocate restricting access to abortion or prenatal testing for Down syndrome, and he does not argue that it is ethically mandatory in all cases to give birth to a child with Down syndrome. People should be free to make important decisions based on their values. Kaposy's argument shows that it may be consistent with their values to welcome a child with Down syndrome into the family.
Author: Chris Kaposy Publisher: MIT Press ISBN: 0262546248 Category : Science Languages : en Pages : 237
Book Description
An argument that more people should have children with Down syndrome, written from a pro-choice, disability-positive perspective. The rate at which parents choose to terminate a pregnancy when prenatal tests indicate that the fetus has Down syndrome is between 60 and 90 percent. In Choosing Down Syndrome, Chris Kaposy offers a carefully reasoned ethical argument in favor of choosing to have such a child. Arguing from a pro-choice, disability-positive perspective, Kaposy makes the case that there is a common social bias against cognitive disability that influences decisions about prenatal testing and terminating pregnancies, and that more people should resist this bias by having children with Down syndrome. Drawing on accounts by parents of children with Down syndrome, and arguing for their objectivity, Kaposy finds that these parents see themselves and their families as having benefitted from having a child with Down syndrome. To counter those who might characterize these accounts as based on self-deception or expressing adaptive preference, Kaposy cites supporting evidence, including divorce rates and observational studies showing that families including children with Down syndrome typically function well. Himself the father of a child with Down syndrome, Kaposy argues that cognitive disability associated with Down syndrome does not lead to diminished well-being. He argues further that parental expectations are influenced by neoliberal ideologies that unduly focus on the supposed diminished economic potential of a person with Down syndrome. Kaposy does not advocate restricting access to abortion or prenatal testing for Down syndrome, and he does not argue that it is ethically mandatory in all cases to give birth to a child with Down syndrome. People should be free to make important decisions based on their values. Kaposy's argument shows that it may be consistent with their values to welcome a child with Down syndrome into the family.
Author: Chris Kaposy Publisher: MIT Press ISBN: 0262037718 Category : Science Languages : en Pages : 237
Book Description
An argument that more people should have children with Down syndrome, written from a pro-choice, disability-positive perspective. The rate at which parents choose to terminate a pregnancy when prenatal tests indicate that the fetus has Down syndrome is between 60 and 90 percent. In Choosing Down Syndrome, Chris Kaposy offers a carefully reasoned ethical argument in favor of choosing to have such a child. Arguing from a pro-choice, disability-positive perspective, Kaposy makes the case that there is a common social bias against cognitive disability that influences decisions about prenatal testing and terminating pregnancies, and that more people should resist this bias by having children with Down syndrome. Drawing on accounts by parents of children with Down syndrome, and arguing for their objectivity, Kaposy finds that these parents see themselves and their families as having benefitted from having a child with Down syndrome. To counter those who might characterize these accounts as based on self-deception or expressing adaptive preference, Kaposy cites supporting evidence, including divorce rates and observational studies showing that families including children with Down syndrome typically function well. Himself the father of a child with Down syndrome, Kaposy argues that cognitive disability associated with Down syndrome does not lead to diminished well-being. He argues further that parental expectations are influenced by neoliberal ideologies that unduly focus on the supposed diminished economic potential of a person with Down syndrome. Kaposy does not advocate restricting access to abortion or prenatal testing for Down syndrome, and he does not argue that it is ethically mandatory in all cases to give birth to a child with Down syndrome. People should be free to make important decisions based on their values. Kaposy's argument shows that it may be consistent with their values to welcome a child with Down syndrome into the family.
Author: Gareth M. Thomas Publisher: Routledge ISBN: 1317338200 Category : Health & Fitness Languages : en Pages : 200
Book Description
Nominated for the Foundation of Sociology of Health and Illness Book Prize 2018 In the UK and beyond, Down’s syndrome screening has become a universal programme in prenatal care. But why does screening persist, particularly in light of research that highlights pregnant women’s ambivalent and problematic experiences with it? Drawing on an ethnography of Down’s syndrome screening in two UK clinics, Thomas explores how and why we are so invested in this practice and what effects this has on those involved. Informed by theoretical approaches that privilege the mundane and micro practices, discourses, materials, and rituals of everyday life, Down’s Syndrome Screening and Reproductive Politics describes the banal world of the clinic and, in particular, the professionals contained within it who are responsible for delivering this programme. In so doing, it illustrates how Down’s syndrome screening is ‘downgraded’ and subsequently stabilised as a ‘routine’ part of a pregnancy. Further, the book captures how this routinisation is deepened by a systematic, but subtle, framing of Down’s syndrome as a negative pregnancy outcome. By unpacking the complex relationships between professionals, parents, technology, policy, and clinical practice, Thomas identifies how and why screening is successfully routinised and how it is embroiled in both new and familiar debates surrounding pregnancy, ethics, choice, diagnosis, care, disability, and parenthood. The book will appeal to academics, students, and professionals interested in medical sociology, medical anthropology, science and technology studies (STS), bioethics, genetics, and/or disability studies.
Author: Natalie Hale Publisher: Special Reads for Special Needs ISBN: 9781088075227 Category : Languages : en Pages : 0
Book Description
About.com 2012 Readers' Choice Award Winner, Favorite New Special-Needs Parenting Book! The author-equal parts mentor, humorist, enthusiast, and realist-takes readers by the hand and walks them through the various life stages, experiences, and people they will encounter with their child. Humor, insight, information, and rock-solid advice guides the reader from birth to independent living in this diamond of a book. Ms. Hale's warm friend-to-friend voice draws in the reader with insights and experiences gleaned not only from raising her own son, but as a teacher in the broad Down syndrome community, she gives us a treasure-trove of meaningful stories from many families. Foreword by Martha Beck, mother of an adult with Down syndrome and author of the New York Times bestseller, Expecting Adam. Down Syndrome Parenting 101 offers inspired takes on a host of important issues, including a deep dive into the extraordinary abilities of individuals with Down syndrome, interacting with medical professionals, literacy, discipline, school, transitioning, independence, and much more. Chapters are short, a plus for busy parents, and can be read individually or sequentially. Throughout, many characters-the author's son, friends, and students-appear, serving as anecdotal evidence in support of the author's points and adding to the storytelling effect. Turn to this upbeat book for credible, realistic advice and for a dose of bibliotherapy when you need validation and perspective. Also check out Natalie Hale's book for teaching reading, Whole Child Reading, and her book on money management skills for young adults with developmental delays, Managing My Money: Banking and Budgeting Basics.
Author: Rayna Rapp Publisher: Routledge ISBN: 1135963924 Category : Social Science Languages : en Pages : 376
Book Description
Rich with the voices and stories of participants, these touching, firsthand accounts examine how women of diverse racial, ethnic, class and religious backgrounds perceive prenatal testing, the most prevalent and routinized of the new reproducing technologies. Based on the author's decade of research and her own personal experiences with amniocentesis, Testing Women, Testing the Fetus explores the "geneticization" of family life in all its complexity and diversity.
Author: William I. Cohen Publisher: John Wiley & Sons ISBN: 0471461229 Category : Health & Fitness Languages : en Pages : 493
Book Description
Der Band bietet einen aktuellen Überblick über klinische, entwicklungsbezogene, psychosoziale, erziehungs- und berufsbezogene Fragen bei Patienten mit Down Syndrom. Er diskutiert auch die Konsequenzen des Human-Genom-Projektes und die Sequenzierung des Chromosom 21. Erörtert aktuellste Entwicklungen, u.a. zum Thema Sexualität, Einbeziehung, Übergang ins Erwachsenenalter und Rechtsprechung. Behandelt die aktuellsten Neuerungen der "Health Care Guidelines for Individuals with Down Syndrome". Enthält auch Material zu mitunter kontrovers diskutierten alternativen und unkonventionellen Therapieansätzen.
Author: Kathryn Lynard Soper Publisher: Special Needs Collection ISBN: 9781606132760 Category : Children with disabilities Languages : en Pages : 0
Book Description
This commemorative 10th anniversary edition of Gifts will include 10 new personal stories, along with "where are they now" updates on many of the children and families featured in the first edition. Gifts is the much-loved collection of over 60 essays written by mothers who share their truths about raising children with Down syndrome. Powerful then and powerful now, it affirms over and over that a life with an extra chromosome is one worth living.
Author: Mari Schuh Publisher: Amicus Publishing ISBN: 1645490785 Category : Juvenile Nonfiction Languages : en Pages : 28
Book Description
Meet Peter! He loves the drums and gym class. He also has Down Syndrome. Peter is real and so are his experiences. Learn about his life in this illustrated narrative nonfiction picture book for elementary students. Kids are naturally curious about differences and disabilities. Peter sheds light on his life, with the help of experienced children's author Mari Schuh. He's not defined by his condition, but he does some things differently than neurotypical people. Beautiful illustrations and a dyslexic-friendly font promote accessibility. Includes tips for kids about interacting with someone who has Down Syndrome.
Author: Jenna Glatzer Publisher: Jayjo Books ISBN: 9781891383199 Category : Juvenile Nonfiction Languages : en Pages : 0
Book Description
This beautifully illustrated and fun-to-read storybook simplifies and normalizes a complicated childhood condition. When read aloud, other children can identify why a peer may be treated differently and begin to empathize with them. In addition, children whose conditions set them apart as being different begin to feel accepted and safe.
Author: Qadoshyah Fish Publisher: Lulu.com ISBN: 0979496233 Category : Down syndrome Languages : en Pages : 591
Book Description
People with Down syndrome can do a lot; this is the reality. We will share with you, in this book, stories from people with Down syndrome who have excelled in many areas and live lives like many other people who do not have Down syndrome. We will also share with you stories about those with Down syndrome who have had medical problems and issues to deal with, yet give joy to those they come in contact with. -- Preface.
Author: Chris Kaposy
Author: Chris Kaposy
Author: Chris Kaposy
Author: Gareth M. Thomas
Author: Natalie Hale
Author: Rayna Rapp
Author: William I. Cohen
Author: Kathryn Lynard Soper
Author: Mari Schuh
Author: Jenna Glatzer
Author: Qadoshyah Fish