Social Work Practice in Pediatric Palliative and End-of-Life Care PDF Download

Author: Barbara Jones
Publisher: Routledge
ISBN: 1317676041
Category : Social Science
Languages : en
Pages : 109

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Book Description
As an essential and emerging practice, Pediatric palliative care seeks to prevent and relieve suffering for children with life-threatening conditions. Palliative care teams are composed of providers of various disciplines, including social workers, who collaborate to address the medical, social-emotional, and spiritual needs of the child, and their families. Social workers are especially accustomed to interdisciplinary care and may counsel, provide resources, facilitate communication, and promote person- and family-centered practices that are the basis of effective pediatric palliative care. This book presents practice strategies, experiential knowledge, and research related to practicing in─collaborative teams, ICU settings, and hospice. It also presents research that is informed by the perceptions and perspectives of bereaved parents, parents who have suffered a stillbirth, and parent caregivers of children with life-limiting illness. This book highlights the unique role social workers play, within care teams and in relationship with children who have life-limiting illness, and their families. This book was originally published as a special issue of the Journal of Social Work in End-of-Life & Palliative Care.

Author: Terry Altilio MSW, ACSW, LCSW
Publisher: Oxford University Press
ISBN: 9780199838271
Category : Medical
Languages : en
Pages : 848

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Book Description
The Oxford Textbook of Palliative Social Work is a comprehensive, evidence-informed text that addresses the needs of professionals who provide interdisciplinary, culturally sensitive, biopsychosocial-spiritual care for patients and families living with life-threatening illness. Social workers from diverse settings will benefit from its international scope and wealth of patient and family narratives. Unique to this scholarly text is its emphasis on the collaborative nature inherent in palliative care. This definitive resource is edited by two leading palliative social work pioneers who bring together an array of international authors who provide clinicians, researchers, policy-makers, and academics with a broad range of content to enrich the guidelines recommended by the National Consensus Project for Quality Palliative Care.

Author: Betty R. Ferrell
Publisher: Hpna Palliative Nursing Manual
ISBN: 0190244186
Category : Medical
Languages : en
Pages : 161

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Book Description
'Pediatric Palliative Care', the fourth volume in the 'HPNA Palliative Nursing Manuals' series, addresses paediatric hospice, symptom management, paediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in paediatric palliative care.

Author: National Research Council
Publisher: National Academies Press
ISBN: 0309074029
Category : Medical
Languages : en
Pages : 344

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Book Description
In our society's aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute's budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriersâ€"scientific, policy, and socialâ€"that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it.

Author: Dona J. Reese
Publisher: Columbia University Press
ISBN: 0231508735
Category : Social Science
Languages : en
Pages : 520

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Book Description
The first text to explore the history, characteristics, and challenges of hospice social work, this volume weaves leading research into an underlying framework for practice and care. A longtime practitioner, Dona J. Reese describes the hospice social work role in assessment and intervention with individuals, families, groups, organizations, and the community, while honestly confronting the personal and professional difficulties of such life-changing work. She introduces a well-tested model of psychosocial and spiritual variables that predict hospice client outcomes, and she advances a social work assessment tool to document their occurrence. Operating at the center of national leaders' coordinated efforts to develop and advance professional organizations and guidelines for end-of-life care, Reese reaches out with support and practice information, helping social workers understand their significance in treating the whole person, contributing to the cultural competence of hospice settings, and claiming a definitive place within the hospice team.

Author: Bridget Sumser
Publisher: Oxford University Press, USA
ISBN: 0190669608
Category : Medical
Languages : en
Pages : 313

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Book Description
Accessible and instructive, Palliative Care guides and inspires health social workers to integrate palliative care principles into their current clinical practice. Through the lenses of environmental theory and intersectionality, rich case narratives and diverse practice settings highlightopportunities for social workers to enhance their work, thereby advancing whole-person care in the face of serious illness. The volume also models engagement, assessment, and intervention through key palliative care skills and language. Chapters include questions to concretize ideas and demonstratereal-world application, while case narratives cover a range of settings, diagnoses, and populations. This book is a useful tool for any social worker working with individuals and families navigating complex health care systems.

Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309303133
Category : Medical
Languages : en
Pages : 638

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Book Description
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.

Author: Peter Beresford
Publisher: Jessica Kingsley Publishers
ISBN: 1843104652
Category : Social Science
Languages : en
Pages : 270

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Book Description
This unique book provides a rare look at social work and palliative care from the perspective of service users. Drawing on new original research, the authors examine service users' experiences, tracking their journeys through it, exploring the care they receive and the effects of culture and difference through their first hand comments and ideas.

Author: Heather Richardson
Publisher: Routledge
ISBN: 1351206575
Category : Medical
Languages : en
Pages : 260

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Book Description
This book draws together the learning of a wide range of social workers and other professionals engaged in end of life care who recognise that dying is essentially a social experience and want to tailor a personal, professional and societal response accordingly. Through a systemic lens, the book explores the nature and experience of living and dying in the UK today, then considers ways in which social workers and others may want to work with people who are affected by a diagnosis of a life-threatening condition. The contributors offer rich and contemporary perspectives on death, dying and loss, reflective of their different approaches and interests. The insights of the book are timely, given the growing levels and changing nature of needs for people who are coming to the end of their life in the UK and beyond, and the related requirements for compassionate, personalised and holistic care within the increasingly professionalised arena of health and social care. This book will be of interest to social work practitioners, students, and others committed to psychosocial support of people who are dying or bereaved, and who want to consider how to provide this support most effectively. Professionals who are interested in working alongside social workers to deliver high quality end of life care will also find this publication useful. This book was originally published as a special issue of the Journal of Social Work Practice.

Author: Institute of Medicine
Publisher: National Academies Press
ISBN: 0309090768
Category : Medical
Languages : en
Pages : 32

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Book Description
This document is a brief summary of the Institute of Medicine report entitled When Children Die: Improving Palliative and End-of-Life Care for Children. Better care is possible now, but current methods of organizing and financing palliative, end-of-life, and bereavement care complicate the provision and coordination of services to help children and families and sometimes require families to choose between curative or life-prolonging care and palliative services, in particular, hospice care. Inadequate data and scientific knowledge impede efforts to deliver effective care, educate professionals to provide such care, and design supportive public policies. Integrating effective palliative care from the time a child's life-threatening medical problem is diagnosed will improve care for children who survive as well as children who die-and will help the families of all these children. The report recognizes that while much can be done now to support children and families, much more needs to be learned. The analysis and recommendations reflect current knowledge and judgments, but new research and insights will undoubtedly suggest modifications and shifts in emphasis in future years.