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Author: Jacqueline Rayner Publisher: Jessica Kingsley Publishers ISBN: 0857008269 Category : Health & Fitness Languages : en Pages : 64
Book Description
Meet Mollie – a woman with an illness called ME (Myalgic Encephalomyelitis) or CFS (Chronic Fatigue Syndrome), and her family, Mike, Ellie and Eric. Mollie and her family help readers to understand what ME/CFS is, what it is like to have it and how it can affect their family life. Mollie can't always do things that other mums do because of her illness, which can sometimes be frustrating, but they share strategies that help them all to cope. The family also explain how ME/CFS can affect different people in different ways. This illustrated book is an ideal introduction to this often misunderstood condition. It shows family, friends and anyone who knows someone with the condition how they can support someone with ME/CFS, and their family.
Author: Jacqueline Rayner Publisher: Can I tell you about ISBN: 9781849054522 Category : Chronic fatigue syndrome Languages : en Pages : 0
Book Description
Mollie and her family help readers to understand what it is like to have ME/CFS and how it can affect their day-to-day family life. They explain what ME/CFS is and how it can affect people in different ways. This illustrated book is packed with accessible information and will be an ideal introduction to this often misunderstood condition.
Author: Institute of Medicine Publisher: National Academies Press ISBN: 0309316928 Category : Medical Languages : en Pages : 304
Book Description
Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.
Author: Dr Cherla Meisterman Lisw, PhD Publisher: ISBN: 9781654247492 Category : Languages : en Pages : 226
Book Description
HELP ME! What I Wish Families Knew About ME/CFS, subtitled, MYALGIC ENCEPHALOMYELITIS (ME) Also Known As: CHRONIC FATIGUE SYNDROME by Rebecca Susan Culbertson, MSW/LISW. Foreword by Dr. Cherla Meisterman, PhD, LISW. HELP ME! This book pleads for families, partners and friends to educate themselves about this horrific illness that literally rips families apart. Divorce rates are over 75% for couples when a spouse has been diagnosed with ME/CFS. A frightening statistic. This book is written for those who have been diagnosed with Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME), Fibromyalgia, or any other chronic debilitating disease. It is written for those who are in limbo, suffering still without a diagnosis, and this book is also written to educate families and friends of persons with ME/CFS. This book will help you learn how to maintain your dignity while dealing with doctors who doubt your illness. You will discover self reporting charts later in this book for use with family, physicians, employers and others. It is difficult to maintain your self confidence if persons in your life do not understand the current state of your functioning. It is of vital importance to educate those around you, when you are able. This book can be a tool to that end. The book provides information about when and how to apply for disability insurance you certainly deserve. Are you watching your former financial security implode right before your eyes? Learn how to deal with creditors and how to manage financial debt with less stress. The book will teach you techniques that the author has used in her Family Therapy Practice with patients in living lives of positivity, seeking happiness, and practicing humility. Learn methods of living with ME/CFS while still setting life goals to realistically achieve your dreams. And importantly, the book is written from the viewpoint of having been diagnosed with ME/CFS herself, and then filtered through her professional perspective as a psychotherapist. Michael McVicker a Prevention Specialist and Family Therapist, concludes this book, (in Chapter 26) with THE IMPORTANCE OF HAVING A PERSONAL SUPPORT SYSTEM. Michael uses true life storytelling mixed with humor to inform families from his section titled, A VIEW FROM THE SIDELINE. He tells his story from watching (at times helplessly) and supporting his spouse, the author of this book, through the misery this illness brings. He also writes through the lens of being a stepfather to their two teenage sons, and watching their ascent into adulthood. He deals with topics not currently addressed in other ME/CFS literature currently available, including sex and intimacy. Divorce is seldom the most ecological solution to this real life crisis. Divorce only exacerbates the familial problems. Dr. Cherla Meisterman, PhD, LISW, (Dr. Cherla's Musings, Chapter 18) offers methods of treating patients with ME/CFS, and attempts to invite other professional therapists to join her in treating this very needy population. With divorce rates so high, questions arise about why more ME/CFS patients do not seek psychotherapy treatment. To me, as a ME/CFS sufferer, it is very clear. Treatment is financially prohibitive, and more importantly persons with this diagnosis have been told verbally and nonverbally, over and over "it's all in your head". So why would any ME/CFS patient want to go to psychotherapy? ("Why go and prove the wrong headed physicians correct - "it's all in my head"?) If the patient is supported by his or her partner, and if the patient feels believed that their illness is real, then psychotherapy may become an option that could potentially save relationships and lower divorce rates. Dr. Cherla addresses how to go about selecting the best therapist for you, and things to consider prior to making that phone call. There are worksheets included for your written expression, and for use with physicians, family members, and others.
Author: Jacqueline Rayner Publisher: Jessica Kingsley Publishers ISBN: 0857008269 Category : Health & Fitness Languages : en Pages : 64
Book Description
Meet Mollie – a woman with an illness called ME (Myalgic Encephalomyelitis) or CFS (Chronic Fatigue Syndrome), and her family, Mike, Ellie and Eric. Mollie and her family help readers to understand what ME/CFS is, what it is like to have it and how it can affect their family life. Mollie can't always do things that other mums do because of her illness, which can sometimes be frustrating, but they share strategies that help them all to cope. The family also explain how ME/CFS can affect different people in different ways. This illustrated book is an ideal introduction to this often misunderstood condition. It shows family, friends and anyone who knows someone with the condition how they can support someone with ME/CFS, and their family.
Author: David S. Bell Publisher: Da Capo Press, Incorporated ISBN: Category : Health & Fitness Languages : en Pages : 314
Book Description
Written by the nation's most recognized CFIDS' authority, this book is the definitive, up-to-date guide to the history, symptoms, effects, theories, treatment, continuing research, and recent advances on CFIDS. Now anyone touched by this devastating illness can have the solid information they need to understand, treat, and live with CFIDS.
Author: Mary J. Shomon Publisher: William Morrow Paperbacks ISBN: 9780060521257 Category : Health & Fitness Languages : en Pages : 416
Book Description
From the author of Living Well With Hypothyroidism, a comprehensive guide to the diagnosis and treatment of chronic fatigue syndrome and fibromyalgia--vital help for the millions of people suffering from pain, fatigue, and sleep problems. Recent studies indicate that 3 to 6 million Americans suffer from fibromyalgia--a chronic disorder characterized by widespread musculoskeletal pain, fatigue, and multiple tender points. This terrible condition is often accompanied by chronic fatigue syndrome, a persistent and debilitating sense of exhaustion that is estimated to affect 800,000 Americans--twice the number of people with multiple sclerosis. Yet there are no official blood tests of diagnostic procedures that can confirm that yes, you definitely have these conditions, and in fact, a whole segment of the medical world doesn't even believe these two diseases actually exist. In addition, the few books that are on the market tend to focus on single solutions or eschew conventional and pharmaceutical approaches, which could alienate readers who use conventional medicine in whole or part. In her trademark accessible, easy-to-follow style, patient advocate Mary J. Shomon integrates the latest findings regarding these misunderstood conditions. Highlighting the pros and cons of the antibiotic, metabolic/endocrine, hormonal, musculoskeletal, and many other approaches to treatment, Shomon explores the fads and viable alternatives--both conventional and alternative--and provides helpful, clear solutions to help sufferers of fibromyalgia and chronic fatigue syndrome. At various points since 1995, Mary J. Shomon has been diagnosed with chronic fatigue syndrome and fibromyalgia. Since then, she has transformed her health challenges into a mission as a nationally-known patient advocate. She has worked for more than 20 years in writing, advertising, public relations, and communications and is the founder and editor-in-chief of several thyroid, autoimmune, and nutrition newsletters, as well as the internet's most popular thyroid disease website, www.thyroid-info.com.
Author: Susan R. Lisman, M.D. Publisher: John Wiley & Sons ISBN: 1118068238 Category : Health & Fitness Languages : en Pages : 386
Book Description
You’ve been repeatedly poked, prodded, tested and scanned, yet, despite how awful you feel, your doctor, like many of your friends, co-workers, and family members have begun dropping subtle (and some not-so-subtle) hints that they think it’s “all in your head.” Maybe you’re one of the lucky few CFS sufferers who’ve received an accurate diagnosis but nothing your health care provider does seems to help. Well, you’re not alone. According to recent estimates, of the approximately 800,000 Americans with CFS, more than 90% have been misdiagnosed, dismissed, or are not receiving proper treatment. Don’t despair, help has arrived. Written by a national expert who has successfully treated scores of CFS patients in her own practice, Chronic Fatigue Syndrome for Dummies gives you the knowledge and tools you need to beat CFS and get back to living a normal life. In plain English Doctor Susan Lisman fills you in on: What CFS is, how you get it, and how it effects your body Its major symptoms and warning signs Getting an accurate diagnosis Avoiding situations that might be making you sicker Teaming up with the right doctor and crafting a treatment plan The most effective drugs, therapies and alternative approaches Coping with CFS in your personal and professional lives Packed with checklists, self-tests, questionnaires, and other powerful tools, and featuring many inspiring real-life stories of patients who’ve licked CFS, Chronic Fatigue Syndrome for Dummies puts you on the road to recovery.
Author: Jacqueline Rayner
Author: Jacqueline Rayner
Author: Institute of Medicine
Author: Dr Cherla Meisterman Lisw, PhD
Author: Sarah Myhill
Author: Jacqueline Rayner
Author: Byron M. Hyde
Author: Jesse A. Stoff
Author: David S. Bell
Author: Mary J. Shomon
Author: Susan R. Lisman, M.D.