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Author: Institute of Medicine Publisher: National Academies Press ISBN: 0309084377 Category : Medical Languages : en Pages : 713
Book Description
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
Author: Institute of Medicine Publisher: National Academies Press ISBN: 0309084377 Category : Medical Languages : en Pages : 713
Book Description
The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.
Author: Kim K. Kuebler Publisher: Elsevier Health Sciences ISBN: 1416030794 Category : Medical Languages : en Pages : 592
Book Description
Palliative and End-of-Life Care, 2nd Edition provides clinicians with the guidelines and tools necessary to provide quality, evidenced-based care to patients with life-limiting illness. This text describes the care and management of patients with advanced disease throughout the disease trajectory, extending from diagnosis of advanced disease until death. Four units provide the general principles of palliative and end-of-life care, important concepts, advanced disease management, and clinical practice guidelines. Clinical practice guidelines offer in-depth discussions of the pathophysiology of 19 different symptoms, interventions for specific symptom management (including in-depth rationales), and suggestions for patient and family teaching. Defines dying as a normal, healthy process aided by the support of an interdisciplinary team. Provides in-depth pathophysiology, assessment, and intervention information based upon the disease trajectory. Highlights opportunities for patient and family teaching. Describes psychosocial issues experienced by patients and their families. Reviews uncomplicated and complicated grief and mourning, providing suggestions to help the family after a patient's death. Includes case studies at the end of chapters to reinforce key concepts of compassionate care. New chapters including Advance Care Planning, Ethical Issues, Spiritual Care Across Cultures, Pharmacology, Sleep, and Nutrition. Includes a new appendix on Assessment Tools and Resources for more comprehensive coverage of palliative and end-of-life care.
Author: Erika Leeuwenburgh Publisher: New Harbinger Publications ISBN: 1572246049 Category : Juvenile Nonfiction Languages : en Pages : 134
Book Description
When a loved one dies, children are faced with a kaleidoscope of feelings, thoughts, and questions. Struggling with these issues can be overwhelming without guidance, support, and creative forms of expression. This bereavement book contains simple, effective activities to help children and parents communicate about death and the grieving process. Through these activities, children will learn how to grow and thrive after the loss of a loved one.
Author: Cynthia MacGregor Publisher: Lyle Stuart ISBN: 0818406283 Category : Bereavement in children Languages : en Pages : 52
Book Description
Poignant, moving and straightforward book that answers questions children ask themselves when their loved ones die. A full-colour picture book that explains death, its effect on the living and some of the beliefs, customs and rituals associated with it.
Author: Patrick Wills Publisher: ISBN: Category : Languages : en Pages : 190
Book Description
The Reality of PTSD When Children Die, details the emotional toll of the death of a child as faced by veteran Fire Captain and Arson Investigator Patrick Wills. On a cold December night in 2007 in Los Angeles County, three young sisters died while sleeping inside of an illegal garage residence that caught fire. The location of the fire identified the wide-spread problem of the lack of safe and affordable housing in California and America. Captain Wills, places the reader inside the illegal residence before, during, and after the fire is discovered. He shares the emotional impact faced by public safety dispatchers, firefighters, paramedics, and law enforcement who responded that night. Join Captain Wills as he details the complex fire and death investigation procedures. The investigation will explain the struggle faced by the survivor of the fire and family members. Anyone exposed to the death of a child, will understands the emotional impact of this experience. Imagine being exposed to the death of multiple children at the same time. As emergency professionals, first responders are expected to hide their emotions and deal with these tragic situations, sometimes daily. How do they learn to cope, and move on after witnessing the results of such a tragic event? Captain/Investigator Patrick Wills is a veteran of the fire service and law enforcement with over 45 years of public safety experience in Los Angeles County and southern California.
Author: Institute of Medicine Publisher: National Academies Press ISBN: 0309090768 Category : Medical Languages : en Pages : 32
Book Description
This document is a brief summary of the Institute of Medicine report entitled When Children Die: Improving Palliative and End-of-Life Care for Children. Better care is possible now, but current methods of organizing and financing palliative, end-of-life, and bereavement care complicate the provision and coordination of services to help children and families and sometimes require families to choose between curative or life-prolonging care and palliative services, in particular, hospice care. Inadequate data and scientific knowledge impede efforts to deliver effective care, educate professionals to provide such care, and design supportive public policies. Integrating effective palliative care from the time a child's life-threatening medical problem is diagnosed will improve care for children who survive as well as children who die-and will help the families of all these children. The report recognizes that while much can be done now to support children and families, much more needs to be learned. The analysis and recommendations reflect current knowledge and judgments, but new research and insights will undoubtedly suggest modifications and shifts in emphasis in future years.
Author: Dick J. Reavis Publisher: University of North Texas Press ISBN: 9781574411294 Category : Biography & Autobiography Languages : en Pages : 134
Book Description
"While he wasn't aware of Carmichael's strategy when he decided to join a 1965 summer voter registration program, Dick J. Reavis felt it instinctively when he told his resistant father the reason he was going. "Dad, if we live in a country where nobody pays attention when Negroes die, then I guess that's the way it has to be. Somebody has to pay the price." The price the white middle-class Texan paid when he spent a summer on the wrong side of the tracks in Demopolis, Alabama, was his innocence.".
Author: Marie Levine Publisher: Booksurge Llc ISBN: 9781594570520 Category : Body, Mind & Spirit Languages : en Pages : 180
Book Description
After several years of writing a regular column about the despair, anger and confusion she felt after the death of her only child, Marie Levine weaves the story of her own bereavement into a collection of essays, poems and writings that chronicle her own surviving mother's journey. As a nightmarish reality envelops her, Marie describes the ultimate restoration of hope and healing as she learns to live a whole new life she could never have imagined. This book has become a "classic" in the genre of bereavement - particularly regarding the loss of a child.
Author: Bill Perkins Publisher: Houghton Mifflin ISBN: 0358099765 Category : Business & Economics Languages : en Pages : 243
Book Description
"A ... new philosophy and ... guide to getting the most out of your money--and out of life--for those who value memorable experiences as much as their earnings"--
Author: Institute of Medicine
Author: Institute of Medicine
Author: Kim K. Kuebler
Author: Erika Leeuwenburgh
Author: Cynthia MacGregor
Author: Patrick Wills
Author: Institute of Medicine
Author: Loren Wilkenfeld
Author: Dick J. Reavis
Author: Marie Levine
Author: Bill Perkins