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Author: Yasser El Miedany Publisher: Springer ISBN: 3319328514 Category : Medical Languages : en Pages : 449
Book Description
This book discusses the role of patient reported outcome measures (PROMs) in the diagnosis and management of rheumatic diseases and their implementation in patient-centered care. It aims to improve the quality and efficiency of patient care in standard practice by outlining the appropriate information-gathering and decision-making processes. The book highlights the evidence and advanced knowledge base of PROMs in rheumatic diseases such as rheumatoid arthritis, systemic lupus erythematosus, juvenile idiopathic arthritis, osteoarthritis, and systemic sclerosis. Featuring reviews of Patient Reported Outcome tools and Physician RheuMetric Measures as well as examples of patient reported outcome questionnaires, Patient Reported Outcome Measures in Rheumatic Diseases serves as an excellent introduction and resource for implementation of PROMs in clinical rheumatology practice.
Author: Yasser El Miedany Publisher: Springer ISBN: 3319328514 Category : Medical Languages : en Pages : 449
Book Description
This book discusses the role of patient reported outcome measures (PROMs) in the diagnosis and management of rheumatic diseases and their implementation in patient-centered care. It aims to improve the quality and efficiency of patient care in standard practice by outlining the appropriate information-gathering and decision-making processes. The book highlights the evidence and advanced knowledge base of PROMs in rheumatic diseases such as rheumatoid arthritis, systemic lupus erythematosus, juvenile idiopathic arthritis, osteoarthritis, and systemic sclerosis. Featuring reviews of Patient Reported Outcome tools and Physician RheuMetric Measures as well as examples of patient reported outcome questionnaires, Patient Reported Outcome Measures in Rheumatic Diseases serves as an excellent introduction and resource for implementation of PROMs in clinical rheumatology practice.
Author: Jennifer L. Barton Publisher: Elsevier Health Sciences ISBN: 0323445241 Category : Medical Languages : en Pages : 225
Book Description
This issue is devoted to patient reported outcomes and their impact in the study of rheumatic diseases and the authors will also discuss PROs and vulnerable populations with rheumatic disease; technology, electronic health records and PROs: past, present and future; the promise of PROMIS – a uniform approach to PROs across rheumatic diseases, quality measures and PROs and how they relate and the importance of PROs in delivering quality care in the rheumatic diseases, and many more exciting articles.
Author: Zahi Touma Publisher: Springer Nature ISBN: 3030733033 Category : Medical Languages : en Pages : 418
Book Description
Systemic Lupus Erythematosus (SLE) is a chronic autoimmune disease that manifests with a myriad of clinical and laboratory features. The assessment of SLE is comprehensive and includes different core set domains; disease activity, damage, health-related quality of life, adverse events and economic impact. This comprehensive book is focused on the instruments and outcome measures utilized in the assessment of SLE. It targets different audiences including physicians, scientists/researchers and different health professionals interested in learning about the art of measurement in SLE. The book highlights the importance of measurement in the assessment of SLE in a clinical settings, research and clinical trials. Each of the chapters provide a systematic approach to the instruments utilized in the assessment of a specific construct in SLE (e.g., disease activity, fatigue, etc.) and incorporate a comprehensive coverage of disease specific and disease generic measures. It also discusses different patient-reported outcomes that are crucial to reflect patient perceptions of their health condition and cover constructs such as fatigue, pain, anxiety and depression, cognition, frailty, and many others.
Author: Agency for Healthcare Research and Quality/AHRQ Publisher: Government Printing Office ISBN: 1587634333 Category : Medical Languages : en Pages : 396
Book Description
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Author: David Cella Publisher: RTI Press ISBN: 193483114X Category : Medical Languages : en Pages : 97
Book Description
Patient-reported outcomes (PROs) are measures of how patients feel or what they are able to do in the context of their health status; PROs are reports, usually on questionnaires, about a patient's health conditions, health behaviors, or experiences with health care that individuals report directly, without modification of responses by clinicians or others; thus, they directly reflect the voice of the patient. PROs cover domains such as physical health, mental and emotional health, functioning, symptoms and symptom burden, and health behaviors. They are relevant for many activities: helping patients and their clinicians make informed decisions about health care, monitoring the progress of care, setting policies for coverage and reimbursement of health services, improving the quality of health care services, and tracking or reporting on the performance of health care delivery organizations. We address the major methodological issues related to choosing, administering, and using PROs for these purposes, particularly in clinical practice settings. We include a framework for best practices in selecting PROs, focusing on choosing appropriate methods and modes for administering PRO measures to accommodate patients with diverse linguistic, cultural, educational, and functional skills, understanding measures developed through both classic and modern test theory, and addressing complex issues relating to scoring and analyzing PRO data.
Author: N. J. Devlin Publisher: ISBN: 9781857175912 Category : Health services administration Languages : en Pages : 83
Book Description
Patient-reported outcome measures (PROMs) use a series of structured questions that ask patients about their health from their point of view, with the aim of improving decision-making at all levels of the NHS. This report looks at the ways in which PROMs data can be used.
Author: Krysia Dziedzic Publisher: Elsevier Health Sciences ISBN: 0702050652 Category : Medical Languages : en Pages : 376
Book Description
Rheumatology is an indispensable resource for physiotherapists, occupational therapists and other health professionals, offering practical approaches to the treatment and management of rheumatic musculoskeletal conditions. The text focuses on applying evidence-based understanding of these conditions to clinical context. The specific disease chapters cover: incidence and prevalence of the condition; clinical presentation and diagnosis; red flags; clinical assessment; important first treatments, early intermediate and long term management; prognosis and long term outcomes. Supporting case histories of increasing complexity and study activities illustrate the clinical relevance of the treatment and management approaches. • Multidisciplinary team approach • Practical solutions to management of conditions supported by the latest research • Case histories of increasing complexity consolidate understanding and develop clinical reasoning • Highlighted boxes throughout contain study tasks and key messages
Author: Institute of Medicine Publisher: National Academies Press ISBN: 0309175070 Category : Medical Languages : en Pages : 252
Book Description
Market forces are driving a radical restructuring of health care delivery in the United States. At the same time, more and more people are living comparatively long lives with a variety of severe chronic health conditions. Many such people are concerned about the trend toward the creation of managed care systems because their need for frequent, often complex, medical services conflicts with managed care's desires to contain costs. The fear is that people with serious chronic disorders will be excluded from or underserved by the integrated health care delivery networks now emerging. Responding to a request from the National Institute of Arthritis and Musculoskeletal and Skin Diseases, this book reflects the results of a workshop that focused on the following questions: Does the model of managed care or an integrated delivery system influence the types of interventions provided to patients with chronic conditions and the clinical and health status outcomes resulting from those interventions? If so, are these effects quantitatively and clinically significant, as compared to the effects that other variables (e.g., income, education, ethnicity) have on patient outcomes? If the type of health care delivery system appears to be related to patient care and outcomes, can specific organizational, financial, or other variables be identified that account for the relationships? If not, what type of research should be pursued to provide the information needed about the relationship between types of health care systems and the processes and outcomes of care provided to people with serious chronic conditions?
Author: Japhet Killewo Publisher: Academic Press ISBN: 9780123822017 Category : Social Science Languages : en Pages : 512
Book Description
Epidemiology and Demography in Public Health provides practical guidance on planning and implementing surveillance and investigation of disease and disease outbreaks. Exploring contributing factors to the dynamics of disease transmission and the identification of population risks, it also includes a discussion of ehtics in epidemiology and demography including important issues of privacy vs. public safety. With a chapter on H1N1 and Bird flu, this book will be important for students and professionals in public health and epidemiology. Focuses on the techniques of surveillance and investigation of disease Includes biostatistics and analysis techniques Explores the ethics of disease studies Includes chapter discussing H1N1 and Bird Flu
Author: Yasser El Miedany
Author: Yasser El Miedany
Author: Jennifer L. Barton
Author: Zahi Touma
Author: Agency for Healthcare Research and Quality/AHRQ
Author: Marika Tammaru
Author: David Cella
Author: N. J. Devlin
Author: Krysia Dziedzic
Author: Institute of Medicine
Author: Japhet Killewo