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Author: Institute of Medicine Publisher: National Academies Press ISBN: 0309055822 Category : Science Languages : en Pages : 105
Book Description
The United States is entering an era when, more than ever, the sharing of resources and information might be critical to scientific progress. Every dollar saved by avoiding duplication of efforts and by producing economies of scale will become increasingly important as federal funding enters an era of fiscal restraint. This book focuses on six diverse case studies that share materials or equipment with the scientific community at large: the American Type Culture Collection, the multinational coordinated Arabidopsis thaliana Genome Research Project, the Jackson Laboratory, the Washington Regional Primate Research Center, the Macromolecular Crystallography Resource at the Cornell High-Energy Synchrotron Source, and the Human Genome Center at Lawrence Livermore National Laboratory. The book also identifies common strengths and problems faced in the six cases, and presents a series of recommendations aimed at facilitating resource sharing in biomedical research.
Author: Institute of Medicine Publisher: National Academies Press ISBN: 0309055822 Category : Science Languages : en Pages : 105
Book Description
The United States is entering an era when, more than ever, the sharing of resources and information might be critical to scientific progress. Every dollar saved by avoiding duplication of efforts and by producing economies of scale will become increasingly important as federal funding enters an era of fiscal restraint. This book focuses on six diverse case studies that share materials or equipment with the scientific community at large: the American Type Culture Collection, the multinational coordinated Arabidopsis thaliana Genome Research Project, the Jackson Laboratory, the Washington Regional Primate Research Center, the Macromolecular Crystallography Resource at the Cornell High-Energy Synchrotron Source, and the Human Genome Center at Lawrence Livermore National Laboratory. The book also identifies common strengths and problems faced in the six cases, and presents a series of recommendations aimed at facilitating resource sharing in biomedical research.
Author: P Wenzel Geissler Publisher: Saint Philip Street Press ISBN: 9781013292194 Category : Languages : en Pages : 274
Book Description
This book is a collection of fictionalised case studies of everyday ethical dilemmas and challenges, encountered in the process of conducting global health research in places where the effects of global, political and economic inequality are particularly evident. It is a training tool to fill the gap between research ethics guidelines, and their implementation 'on the ground'. The case studies, therefore, focus on 'relational' ethics: ethical actions and ideas that emerge through relations with others, rather than in regulations. This work was published by Saint Philip Street Press pursuant to a Creative Commons license permitting commercial use. All rights not granted by the work's license are retained by the author or authors.
Author: P. Michael Conn Publisher: Springer Science & Business Media ISBN: 1597452858 Category : Medical Languages : en Pages : 756
Book Description
The collection of systems represented in this volume is a unique effort to reflect the diversity and utility of models used in biomedicine. That utility is based on the consideration that observations made in particular organisms will provide insight into the workings of other, more complex systems. This volume is therefore a comprehensive and extensive collection of these important medical parallels.
Author: Y.M. Patil Publisher: Scientific Publishers ISBN: 9386237318 Category : Reference Languages : en Pages : 333
Book Description
The book deals with resource sharing through consortium approach. During 1990s, due to journals crisis, emergence of scholarly electronic publishing, shift in print form to electronic version, escalation of costs of journals, all have compelled library professionals to move towards a strategic relationship in forming consortium by taking advantage of emerging new technologies. To begin with, resource sharing is briefed covering library cooperation. Emergence of electronic publishing has facilitated subscription to e-journals, access and delivery mechanisms. With proliferation of e-resources, constraints of copyright laws and licensing, library consortia have emerged with a sole aim of moving from organizational self sufficiency to a collaborative survival mode. There are several consortia types/models at organization level, types of libraries participating and parent organizations depending upon coverage of subject areas and purpose of coming together. The very purpose of consortia is to deal with pricing and licensing by means of negotiations and strike a deal suitable for stakeholders. With growth of different consortia in a country or region, it is desirable to coordinate all such efforts and look for National Consortium and go for National Site Licensing. Publishers were also providing bundled or ‘big deal’ offers which could solve journals crisis but not budget constraints as faced by libraries. With experience gained in forming consortia, library professionals also gained enough skills for negotiations which bring about win-win-situation to all stakeholders. In order to implement consortia activities, it is required to have minimum infrastructure including access to Internet, e-mail service, IP addresses, networking, archiving, etc. Also, the consortia should have some standards/ protocols such as COUNTER/SUSHI and SERU to run activities effectively. It is also important to look into archiving needs of consortia on a long term basis as publishers’ perpetual access suffer from trust factors, as a result of which some international agencies have emerged. It is also worth looking for consortia migration and merger in order to make better use of available information and enhance consortia interests on a much larger scales. There have been concerted efforts in India in forming consortia and a brief of each consortium is given followed by experiences gained which created confidence and strength to run consortia on a sustainable basis.
Author: Doris Schroeder Publisher: Springer Science & Business Media ISBN: 9400762054 Category : Law Languages : en Pages : 250
Book Description
Biomedical research is increasingly carried out in low- and middle-income countries. International consensus has largely been achieved around the importance of valid consent and protecting research participants from harm. But what are the responsibilities of researchers and funders to share the benefits of their research with research participants and their communities? After setting out the legal, ethical and conceptual frameworks for benefit sharing, this collection analyses seven historical cases to identify the ethical and policy challenges that arise in relation to benefit sharing. A series of recommendations address possible ways forward to achieve justice for research participants in low- and middle-income countries.
Author: Institute of Medicine Publisher: National Academies Press ISBN: 0309316324 Category : Medical Languages : en Pages : 304
Book Description
Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research--from funders, to researchers, to journals, to physicians, and ultimately, to patients.
Author: United States. Congress. Senate. Committee on Governmental Affairs Publisher: ISBN: Category : Government publications Languages : en Pages : 344
Author: Institute of Medicine
Author: Institute of Medicine
Author: P Wenzel Geissler
Author: P. Michael Conn
Author: National Research Council
Author: Y.M. Patil
Author: Doris Schroeder
Author: Institute of Medicine
Author: United States. Congress. Senate. Committee on Governmental Affairs
Author: Helen M. Wood
Author: National Center for Research Resources (U.S.)