Author: Anne-Mei The Publisher: Amsterdam University Press ISBN: 9053560777 Category : Social Science Languages : en Pages : 204
Book Description
Nederland telt op dit moment 250.000 dementerenden en hun aantal neemt toe. Ooit treft wellicht onze ouders, onze geliefden of onszelf dit lot. Anne-Mei The werkte als onderzoeker twee jaar in een verpleeghuis. Zij onthult wat meestal verborgen blijft: de beslissing om te stoppen met behandelen. De armoede en voodoo-rituelen van de gekleurde verzorgenden. Problemen die kunnen optreden met de familie. Spanningen, agressie en seks op de afdeling. Maar ze maakt ons ook deelgenoot van ontroerende en hilarische taferelen. Daarnaast ontrafelt The 'de zaak 't Blauwbörgje' die in de jaren negentig in het nieuws kwam. De familie van een diep demente man beschuldigde het verpleeghuis van poging tot moord. Wat ging er mis? En kan zoiets weer gebeuren? Het boek leest als een roman en zet eenieder aan het denken over de invulling van zijn of haar eigen levenseinde in het geval van dementie.
Author: Janette Davies Publisher: Berghahn Books ISBN: 1785336150 Category : Social Science Languages : en Pages : 172
Book Description
This in-depth description of life in a nursing/care home for 70 residents and 40 staff highlights the daily care of frail or ill residents between 80 and 100 years of age, including people suffering with dementia. How residents interact with care assistants is emphasised, as are the different behaviours of men and women observed during a year of daily conversations between the author, patients and staff, who share their stories of the pressures of the work. Living Before Dying shows a world where, in extreme old age, people have to learn how to cope with living communally.
Author: Esther Chang Publisher: ACER Press ISBN: 1742863310 Category : Health & Fitness Languages : en Pages : 247
Book Description
A sensitive, direct and highly accessible insight into the complexities and challenges that a diagnosis of dementia presents. Contributors represent academics, practicing nurses, aged care professionals and family advocates.
Author: Barbara Karnes Publisher: ISBN: 9780983784197 Category : Death Languages : en Pages : 21
Book Description
Caring for someone with dementia presents different challenges than caring for others with health care issues.People with dementia don't "play by the rules" that signify approaching death from disease or old age. This booklet outlines the issues and progress that a person with dementia will probably follow.The aim of this booklet is to provide information regarding approaching end of life to those people, family and significant others, who are making decisions for and caring for someone with dementia. It would be given to the family upon admission to the Palliative Care program or to any family that is having to address the eating and not eating dilemma.Like it's companions, Gone From My Sight and The Eleventh Hour, How Do I Know You? is short, written in large print, and the information is conveyed in a simple, direct yet gentle manner.
Author: Neil Small Publisher: ISBN: 0198566875 Category : Medical Languages : en Pages : 262
Book Description
Improvements in health care in the 21st century mean people are living longer, but with the paradox that chronic illness is increasingly prevalent. Dementia, a term used to describe various different brain disorders that involve a loss of brain function that is usually progressive and eventually severe, is a condition associated with an ageing population and is becoming increasingly common. Worldwide there are approximately 25 million people with dementia, expected to rise to 63 million by 2030, and 114 million by 2050. Inevitably, people living with dementia will die, but their needs at the end of life are not well known. This book describes what might be achieved if the values and best practice of both dementia care and palliative care are brought together, to achieve quality end of life care for this specific group of patients. It explores what is known about the experience of dying with dementia, using a narrative approach, and develops a model that draws together a 'person-centered' approach to care. The book examines the possibiities and the challenges faced when trying to improve quality of life for people with dementia, and presents examples of good practice from across the world.
Author: Tom Kitwood Publisher: McGraw-Hill Education (UK) ISBN: 0335248039 Category : Medical Languages : en Pages : 234
Book Description
The original Dementia Reconsidered: The Person Comes First by Tom Kitwood was published by Open University Press in 1997. It was a seminal text in the field of dementia studies and is still cited and referenced as core reading on person-centred dementia care. Tom died unexpectedly, just 12 months after the book was published. This book continues to inspire many people to challenge simplistic paradigms about dementia. Since the original book was written, however, there have been many changes in our understanding of dementia. The editor of this new edition, Dawn Brooker was mentored by Tom Kitwood. She has drawn together a remarkable group of writers to provide a commentary on Kitwood’s work. This new edition reproduces the original chapters but provides extra content from subject experts to update the book to a contemporary level. Dementia Reconsidered Re-visited is an ideal main text or supplementary text for all those studying or working in nursing, medicine, psychiatry, psychology, occupational therapy, social work, adult education, gerontology and health and social care more generally. “This important book does three things. It brings to a new generation the insight and vision of Tom Kitwood. It highlights the remarkable progress we have made in recent years. But most important of all it reminds us what still needs to be done if we are to fully respect the rights of people with dementia and their family care-givers. Kitwood inspired Alzheimer’s Society to knit together research, care, and societal change. We are now re-inspired to make sure all progress is evidenced and evaluated for its impact. We must realise the enormous opportunities the digital age offers people affected by dementia but in doing so constantly listen to and learn from their many and varied voices across nations and cultures.” Jeremy Hughes CBE, Chief Executive, Alzheimer's Society, UK
Author: Tia Powell Publisher: Penguin ISBN: 0735210918 Category : Health & Fitness Languages : en Pages : 322
Book Description
Now in paperback, the cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.
Author: Polly L. Spainhour Publisher: PublishAmerica ISBN: 1462631274 Category : Family & Relationships Languages : en Pages : 284
Book Description
"Polly was born in Surry County, N. C. She graduated from Pinnacle High School in 1964. She attended Winston-Salem Business College, and worked for North Carolina Baptist Hospital until she retired in 2008. She has taken several writing classes at Salem College, Winston-Salem, N. C. She was given the Editor's Choice Award in The Path Not Taken, by the National Library of Poetry. She has also had poetry published in Beyond the Stars, Where Dawn Lingers, Poetic Voices of America, and Treasured Poems of America. She has also self-published Daisies Rainbows Dreams. This is her story of being a caregiver and her husband's battle with Alzheimer's."
Author: Amy Bloom Publisher: Random House ISBN: 0593243943 Category : Biography & Autobiography Languages : en Pages : 241
Book Description
NEW YORK TIMES BESTSELLER • A powerful memoir of a love that leads two people to find a courageous way to part—and a woman’s struggle to go forward in the face of loss—that “enriches the reader’s life with urgency and gratitude” (The Washington Post) “A pleasure to read . . . Rarely has a memoir about death been so full of life. . . . Bloom has a talent for mixing the prosaic and profound, the slapstick and the serious.”—USA Today ONE OF THE BEST BOOKS OF THE YEAR: NPR Amy Bloom began to notice changes in her husband, Brian: He retired early from a new job he loved; he withdrew from close friendships; he talked mostly about the past. Suddenly, it seemed there was a glass wall between them, and their long walks and talks stopped. Their world was altered forever when an MRI confirmed what they could no longer ignore: Brian had Alzheimer’s disease. Forced to confront the truth of the diagnosis and its impact on the future he had envisioned, Brian was determined to die on his feet, not live on his knees. Supporting each other in their last journey together, Brian and Amy made the unimaginably difficult and painful decision to go to Dignitas, an organization based in Switzerland that empowers a person to end their own life with dignity and peace. In this heartbreaking and surprising memoir, Bloom sheds light on a part of life we so often shy away from discussing—its ending. Written in Bloom’s captivating, insightful voice and with her trademark wit and candor, In Love is an unforgettable portrait of a beautiful marriage, and a boundary-defying love.
Author: Anne-Mei The
Author: Janette Davies
Author: Anne Kenny
Author: Esther Chang
Author: Barbara Karnes
Author: Neil Small
Author: Tom Kitwood
Author: Tia Powell
Author: Polly L. Spainhour
Author: Amy Bloom