Author: National Academies of Sciences, Engineering, and Medicine Publisher: National Academies Press ISBN: 0309389224 Category : Computers Languages : en Pages : 67
Book Description
Recent disclosures about the bulk collection of domestic phone call records and other signals intelligence programs have stimulated widespread debate about the implications of such practices for the civil liberties and privacy of Americans. In the wake of these disclosures, many have identified a need for the intelligence community to engage more deeply with outside privacy experts and stakeholders. At the request of the Office of the Director of National Intelligence, the National Academies of Sciences, Engineering, and Medicine convened a workshop to address the privacy implications of emerging technologies, public and individual preferences and attitudes toward privacy, and ethical approaches to data collection and use. This report summarizes discussions between experts from academia and the private sector and from the intelligence community on private sector best practices and privacy research results.
Author: Institute of Medicine Publisher: National Academies Press ISBN: 0309071879 Category : Computers Languages : en Pages : 208
Book Description
The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.
Author: Alessandro Acquisti Publisher: CRC Press ISBN: 9781420052183 Category : Computers Languages : en Pages : 496
Book Description
While traveling the data highway through the global village, most people, if they think about it at all, consider privacy a non-forfeitable right. They expect to have control over the ways in which their personal information is obtained, distributed, shared, and used by any other entity. According to recent surveys, privacy, and anonymity are the fundamental issues of concern for most Internet users, ranked higher than ease-of-use, spam, cost, and security. Digital Privacy: Theory, Techniques, and Practices covers state-of-the-art technologies, best practices, and research results, as well as legal, regulatory, and ethical issues. Editors Alessandro Acquisti, Stefanos Gritzalis, Costas Lambrinoudakis, and Sabrina De Capitani di Vimercati, established researchers whose work enjoys worldwide recognition, draw on contributions from experts in academia, industry, and government to delineate theoretical, technical, and practical aspects of digital privacy. They provide an up-to-date, integrated approach to privacy issues that spells out what digital privacy is and covers the threats, rights, and provisions of the legal framework in terms of technical counter measures for the protection of an individual’s privacy. The work includes coverage of protocols, mechanisms, applications, architectures, systems, and experimental studies. Even though the utilization of personal information can improve customer services, increase revenues, and lower business costs, it can be easily misused and lead to violations of privacy. Important legal, regulatory, and ethical issues have emerged, prompting the need for an urgent and consistent response by electronic societies. Currently there is no book available that combines such a wide range of privacy topics with such a stellar cast of contributors. Filling that void, Digital Privacy: Theory, Techniques, and Practices gives you the foundation for building effective and legal privacy protocols into your business processes.
Author: National Research Council Publisher: National Academies Press ISBN: 0309134005 Category : Computers Languages : en Pages : 450
Book Description
Privacy is a growing concern in the United States and around the world. The spread of the Internet and the seemingly boundaryless options for collecting, saving, sharing, and comparing information trigger consumer worries. Online practices of business and government agencies may present new ways to compromise privacy, and e-commerce and technologies that make a wide range of personal information available to anyone with a Web browser only begin to hint at the possibilities for inappropriate or unwarranted intrusion into our personal lives. Engaging Privacy and Information Technology in a Digital Age presents a comprehensive and multidisciplinary examination of privacy in the information age. It explores such important concepts as how the threats to privacy evolving, how can privacy be protected and how society can balance the interests of individuals, businesses and government in ways that promote privacy reasonably and effectively? This book seeks to raise awareness of the web of connectedness among the actions one takes and the privacy policies that are enacted, and provides a variety of tools and concepts with which debates over privacy can be more fruitfully engaged. Engaging Privacy and Information Technology in a Digital Age focuses on three major components affecting notions, perceptions, and expectations of privacy: technological change, societal shifts, and circumstantial discontinuities. This book will be of special interest to anyone interested in understanding why privacy issues are often so intractable.
Author: Nina Gerber Publisher: Springer Nature ISBN: 303128643X Category : Psychology Languages : en Pages : 380
Book Description
This book covers topics needed to be considered in research around usable privacy. The book starts from a psychological perspective and introduces readers to basic behavioral theories and models that can explain end-user privacy behavior (including the “privacy paradox”) on a theoretical level. Subsequently, an introduction to different study methods (e.g., experiment, survey, interviews, co-creation) used in usable privacy research is given. Based on this, different methodological aspects, such as identifying appropriate questionnaires, and applying User-Centered Design, will be discussed. Finally, the book describes application areas for privacy research such as dark patterns and presents solutions for privacy protection, e.g., regarding consent-giving and PETs. The book aims to bring together the different research approaches to the topic of usable privacy, which often originate from computer science, psychology, and law, and provide a methodologically sound basis for researchers who want to delve deeper into this topic. This is an open access book.
Author: OECD Publisher: OECD Publishing ISBN: 9264244565 Category : Languages : en Pages : 200
Book Description
This report identifies eight key data governance mechanisms to maximise benefits to patients and to societies from the collection, linkage and analysis of health data, and to minimise risks to both patient privacy and the security of health data.
Author: William W. Lowrance Publisher: Cambridge University Press ISBN: 1139510827 Category : Law Languages : en Pages : 203
Book Description
The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward.
Author: John I. Gallin Publisher: Academic Press ISBN: 0128499044 Category : Science Languages : en Pages : 824
Book Description
Principles and Practice of Clinical Research, Fourth Edition has been thoroughly revised to provide a comprehensive look at both the fundamental principles and expanding practice of clinical research. New to this edition of this highly regarded reference, authors have focused on examples that broadly reflect clinical research on a global scale while including a discussion of international regulations, studies, and implications. In addition to key topics such as bioethics, clinical outcome data, cultural diversity, protocol guidelines, and “omic platforms, this edition contains new chapters devoted to electronic health records and information resources for clinical researchers, as well as the many opportunities associated with big data. Covering a vast number of topics and practical advice for both novice and advanced clinical investigators, this book is a highly relevant and essential resource for all those involved in conducting research. Features input from experts in the field dedicated to translating scientific research from bench to bedside and back Provides expanded coverage of global clinical research Contains hands-on, practical suggestions, illustrations, and examples throughout Includes new chapters on the international regulation of drugs and biologics, the emergence of the important role of comparative effectiveness research and how to identify clinical risks and manage patient safety in a clinical research setting
Author: National Academies of Sciences, Engineering, and Medicine
Author: Institute of Medicine
Author: Alessandro Acquisti
Author: National Research Council
Author: Nina Gerber
Author: Julia Lane
Author: OECD
Author: William W. Lowrance
Author: John I. Gallin
Author: