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Author: Kieron Smith Publisher: John Hunt Publishing ISBN: 1846946131 Category : Family & Relationships Languages : en Pages : 90
Book Description
Are we a more accepting society than ever before? Is there no longer a them and us division between the disabled and everybody else? The Politics of Down Syndrome looks at how we got to where we are today, from the racist roots of its identification to the rising number of abortions today. Down syndrome is the most common syndrome in the world, shared by all classes and races, yet it's one we rarely address our feelings about, head on. This book, although direct and questioning, takes a positive view about where we go from here and the opportunity for society to fully enjoy the benefits of being inclusive.
Author: Kieron Smith Publisher: John Hunt Publishing ISBN: 1846946131 Category : Family & Relationships Languages : en Pages : 90
Book Description
Are we a more accepting society than ever before? Is there no longer a them and us division between the disabled and everybody else? The Politics of Down Syndrome looks at how we got to where we are today, from the racist roots of its identification to the rising number of abortions today. Down syndrome is the most common syndrome in the world, shared by all classes and races, yet it's one we rarely address our feelings about, head on. This book, although direct and questioning, takes a positive view about where we go from here and the opportunity for society to fully enjoy the benefits of being inclusive.
Author: Gareth M. Thomas Publisher: Routledge ISBN: 1317338200 Category : Health & Fitness Languages : en Pages : 200
Book Description
Nominated for the Foundation of Sociology of Health and Illness Book Prize 2018 In the UK and beyond, Down’s syndrome screening has become a universal programme in prenatal care. But why does screening persist, particularly in light of research that highlights pregnant women’s ambivalent and problematic experiences with it? Drawing on an ethnography of Down’s syndrome screening in two UK clinics, Thomas explores how and why we are so invested in this practice and what effects this has on those involved. Informed by theoretical approaches that privilege the mundane and micro practices, discourses, materials, and rituals of everyday life, Down’s Syndrome Screening and Reproductive Politics describes the banal world of the clinic and, in particular, the professionals contained within it who are responsible for delivering this programme. In so doing, it illustrates how Down’s syndrome screening is ‘downgraded’ and subsequently stabilised as a ‘routine’ part of a pregnancy. Further, the book captures how this routinisation is deepened by a systematic, but subtle, framing of Down’s syndrome as a negative pregnancy outcome. By unpacking the complex relationships between professionals, parents, technology, policy, and clinical practice, Thomas identifies how and why screening is successfully routinised and how it is embroiled in both new and familiar debates surrounding pregnancy, ethics, choice, diagnosis, care, disability, and parenthood. The book will appeal to academics, students, and professionals interested in medical sociology, medical anthropology, science and technology studies (STS), bioethics, genetics, and/or disability studies.
Author: Jason Kingsley Publisher: HMH ISBN: 0547350856 Category : Biography & Autobiography Languages : en Pages : 219
Book Description
Award winner: “Hearing about Down syndrome directly from these young men has a good deal more impact than reading any guide from a professional.” —Booklist This book is in Mitchell and Jason’s own words. . . . We wanted readers to have a true-to-life sense of their charm, their directness, their humor and warmth, and, yes, their intelligence. At ages nineteen and twenty-two, respectively, Jason Kingsley and Mitchell Levitz shared their innermost thoughts, feelings, hopes, dreams―and their experiences growing up with Down syndrome. Their frank discussion of what mattered most in their lives―careers, friendships, school, sex, marriage, finances, politics, and independence―earned Count Us In numerous national awards, including the EDI Award from the National Easter Seal Society. More important, their wit, intelligence, candor, and charm made for a powerful and inspirational statement about the full potential of people with developmental disabilities, challenging prevailing stereotypes. In this edition, with a new afterword, the authors also discuss their lives since then: milestones and challenges, and changes both expected and unexpected. “Their parents were told to expect nothing. But Jason Kingsley and Mitchell Levitz were lucky, because their parents didn’t listen. They gave their sons that chance to show how far they could go—and they’ve astounded everyone!” —Jane Pauley “This single volume will do more to change stereotypes about Down syndrome than any book I have read. These two young men steal our hearts and wash away generations of misconceptions.” —Mary L. Coleman, MD, Emeritus, Georgetown University “An excellent illustration of what it’s like to have Down syndrome . . . Most moving here are the portrayals of strong family relationships.” —Publishers Weekly “Will open eyes and touch the heart.” —Library Journal
Author: Richard Spilsbury Publisher: The Rosen Publishing Group, Inc ISBN: 1508182825 Category : Juvenile Nonfiction Languages : en Pages : 50
Book Description
First identified in the nineteenth century, Down syndrome is one of the most recognizable genetic disorders, marked by characteristic facial features and mild to moderate intellectual disability. Since scientists discovered in the 1950s that people with Down syndrome have an extra copy of chromosome 21, there has been much more research into the disorder, how to screen for it, and how to treat individuals who have it. This informative book covers all aspects of Down syndrome and includes accounts from people who have it.
Author: Monica Cuskelly Publisher: John Wiley & Sons ISBN: 0470777982 Category : Psychology Languages : en Pages : 300
Book Description
This book promotes a positive message for people with Down syndrome across the world. Living with Down Syndrome is a positive experience for the majority of children and adults with Down syndrome, and for their families. Of course there are difficulties to be faced, but quality of life, from infancy to old age, is determined more by the quality of healthcare, education and social inclusion offered to individuals, than by the developmental difficulties that are associated with Down syndrome. The aim of this book is to bring the latest information on research and good practice to families, practitioners and policy makers in order improve the services available to individuals with Down syndrome in all countries.
Author: Gareth M. Thomas Publisher: Taylor & Francis ISBN: 1317338219 Category : Health & Fitness Languages : en Pages : 200
Book Description
In the UK and beyond, Down’s syndrome screening has become a universal programme in prenatal care. But why does screening persist, particularly in light of research that highlights pregnant women’s ambivalent and problematic experiences with it? Drawing on an ethnography of Down’s syndrome screening in two UK clinics, Thomas explores how and why we are so invested in this practice and what effects this has on those involved. Informed by theoretical approaches that privilege the mundane and micro practices, discourses, materials, and rituals of everyday life, Down’s Syndrome Screening and Reproductive Politics describes the banal world of the clinic and, in particular, the professionals contained within it who are responsible for delivering this programme. In so doing, it illustrates how Down’s syndrome screening is ‘downgraded’ and subsequently stabilised as a ‘routine’ part of a pregnancy. Further, the book captures how this routinisation is deepened by a systematic, but subtle, framing of Down’s syndrome as a negative pregnancy outcome. By unpacking the complex relationships between professionals, parents, technology, policy, and clinical practice, Thomas identifies how and why screening is successfully routinised and how it is embroiled in both new and familiar debates surrounding pregnancy, ethics, choice, diagnosis, care, disability, and parenthood. The book will appeal to academics, students, and professionals interested in medical sociology, medical anthropology, science and technology studies (STS), bioethics, genetics, and/or disability studies.
Author: Dante Cicchetti Publisher: Cambridge University Press ISBN: 9780521386678 Category : Medical Languages : en Pages : 492
Book Description
This volume offers a state-of-art review of what is known about young children with Down syndrome from a developmental perspective. The underlying theme of the book is that children with Down syndrome, despite their constitutional anomalies and their additional medical and biological problems, can be understood from a normative developmental framework. Interventions guided by developmental principles in the biological, educational and psychological realms are more likely to result in informed knowledge about how best to help children with Down syndrome and their families. Children with Down Syndrome will appeal to researchers, theoreticians, educators, and clinicians in a range of disciplines, as well as to parents, social policymakers, and other advocates for the best interests of children with Down syndrome.
Author: Emmy Oo Daniels Publisher: Independently Published ISBN: Category : Biography & Autobiography Languages : en Pages : 0
Book Description
Embark on an inspiring journey of resilience, advocacy, and triumph with "Champion of Inclusion: The Inspirational Story of Spain's First Down Syndrome Parliamentarian María del Mar Galcerán." This compelling biography, titled "From Diagnosis to Legislation," unfolds the extraordinary life of María del Mar Galcerán, who defied societal expectations and became a trailblazer in the world of politics. From the moment of Mar's diagnosis with Down syndrome to her historic entry into Spain's political arena, this book navigates the highs and lows of her remarkable journey. Follow Mar's evolution from a child breaking educational barriers to a passionate advocate shaping legislative change. Discover the pivotal role her parents, Luis and Isabel Galcerán, played in nurturing her potential and spearheading a movement for inclusion. "Champion of Inclusion" goes beyond the legislative achievements, offering an intimate exploration of Mar's personal triumphs and the challenges faced in the public eye. As Spain's first parliamentarian with Down syndrome, Mar encountered skepticism, discrimination, and media scrutiny, yet her unwavering spirit prevailed. This book highlights the enduring impact of Mar's legislative contributions, examining the tangible changes in education, employment, and accessibility that she championed. It delves into the ongoing struggle for societal inclusion, challenging perceptions and paving the way for a more equitable future. María del Mar Galcerán's story is a testament to the transformative power of representation and the resilience required to break down societal barriers. Her legacy extends beyond legislation, inspiring future generations within the Down syndrome community and reshaping the narrative surrounding individuals with developmental differences. "Champion of Inclusion" is a captivating narrative that will leave you inspired, moved, and motivated to challenge your own perceptions. Whether you seek stories of triumph over adversity, advocate for inclusivity, or aspire to make a difference in the world, this biography is a compelling must-read. Join us on a journey from diagnosis to legislation and witness the indomitable spirit of a true champion of inclusion.
Author: Kieron Smith
Author: Kieron Smith
Author: Gareth M. Thomas
Author: Jason Kingsley
Author: Richard Spilsbury
Author: Monica Cuskelly
Author: Cliff Cunningham
Author: Gareth M. Thomas
Author: Dante Cicchetti
Author: S. M. Pueschel
Author: Emmy Oo Daniels